Discover and read the best of Twitter Threads about #citizensjuries

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Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)

It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].

Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... Terms of reference for the review  1. How do we facilitate a
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...

"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:

gov.uk/government/new… The far-reaching independent review into potential ethnic bi
Read 159 tweets
If @NHSEngland claimed that, NHS England LIED. (Not for the first time...)

The original @PalantirTech contract is here:

cdn-prod.opendemocracy.net/media/document…

And the story behind how it was awarded is here:

thebureauinvestigates.com/stories/2021-0…

#WatermelonCocktails
If @NHSEngland & @NHSX want to talk about #transparency and proper #process, then why haven't they published the data release register for the #COVIDDataStore from which @PalantirTech and others are fed?

We've been asking for it since March 2020; we reiterated & escalated our...
..request in writing in June 2020; colleagues at @useMYdata made an identical request in October 2020:

usemydata.org/resources/use%…

and @NHSEngland's Chief Data & Analytics Officer told #CitizensJuries in March, April and May 2021 that she could share the #COVIDDataStore...
Read 6 tweets

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