Discover and read the best of Twitter Threads about #complexillnesses

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#PainAwarenessMonth
My kids have #hereditarypancreatitis. The pancreas can weak havoc on ones body; nausea, malabsorption,vitamin deficiency and #pain; horrible pain. The option we were given was 2 remove #pancreas, spleen, half the stomach & other ‘parts’ to 1/ Image
ensure that there 75% of developing #pancreascancer did not occur & that it would address their pain. It did not. They both came out with multiple complications. While this transplant CAN produce good outcomes there are a number, such as my kids left with #pain 2/
and multiple life issues. Many have been abandoned by the hospital that did the transplant & are having to navigate the system to figure out care. When you have no #pancreas, no spleen, only half a stomach constant #pain, malabsorption & an entire host of issues 3/ Image
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