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Through 2021 young people living with #RareDiseases share their experience of transitioning from paediatric to adult care in this new report created by Costello Medical in collaboration with @camraredisease & @RareBeacon
Please download & share lnkd.in/e4zc5WZ6
Through 2021 young people living with #RareDiseases share their experience of transitioning from paediatric to adult care in this new report created by Costello Medical in collaboration with @camraredisease & @RareBeacon
Please download & share lnkd.in/e4zc5WZ6
Transition has been described as “the purposeful and planned movement of adolescents and young adults with chronic physical and medical conditions from child-centred to adult orientated healthcare systems”.
But were their experiences planned & purposeful?
#Transition
But were their experiences planned & purposeful?
#Transition
In the UK Rare Diseases Framework published Jan ‘21, it’s recognised that we must address “the challenges in ensuring continuity of care across paediatric and adult services” to reduce the burden of care on patients and their families.
@DHSCgovuk @GeneticAll_UK #CONCORDstudy
@DHSCgovuk @GeneticAll_UK #CONCORDstudy
