Discover and read the best of Twitter Threads about #consensual
Most recents (11)
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…
gov.uk/government/spe…
gov.uk/government/spe…
Earlier today we got a bunch of detail out of @NHSDigital’s Board papers and services performance pack - what of that will continue post-#merger?
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?
I see #NHSEx has published the slides from its @HDR_UK “Data Access & Discovery” event, charmingly subtitled “A Forest Through the TREs” - on YouTube, if you want to listen:
__
*I thought the phrase was “cannot see the forest for the TREs”, but hey...
__
*I thought the phrase was “cannot see the forest for the TREs”, but hey...
Let’s take a look:
hdruk.ac.uk/wp-content/upl…
One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
hdruk.ac.uk/wp-content/upl…
One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
Call yours what you like (e.g. for @ONS it's their Secure Research Service) but if it only does four #Safes, or three Safes - and if it isn’t also #consensual and fully #transparent - then it's not a #trustworthy TRE...
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts...
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
#POCUS Ocular
Este Sábado 4 de Diciembre el Dr. Patrick Caqui nos habló de #DVNO/#ONSD, Relación Globo Ocular/DVNO y Pupilometría
Abrimos 🆕 🧵 con algunos de los puntos más interesantes y comentarios extras.
¿Podrás mejorar tu desempeño en 👁️👁️🗨️?
Este Sábado 4 de Diciembre el Dr. Patrick Caqui nos habló de #DVNO/#ONSD, Relación Globo Ocular/DVNO y Pupilometría
Abrimos 🆕 🧵 con algunos de los puntos más interesantes y comentarios extras.
¿Podrás mejorar tu desempeño en 👁️👁️🗨️?
A manera de introducción se mencionaron los temas a tratar. Utilidad indiscutible en el paciente neurocrítico.
Antes y durante de 1999 se estaba ocupando el modo B para la evaluación ocular, posteriormente se adicionó el Doppler Color y Pulsado y el Modo-M.
Los tiempos cambian.
Antes y durante de 1999 se estaba ocupando el modo B para la evaluación ocular, posteriormente se adicionó el Doppler Color y Pulsado y el Modo-M.
Los tiempos cambian.
En el 2020 el Dr. Patrick de #PedsICU 🇵🇪 público, en base a un caso clínico de amebiasis cerebral, un artículo acerca de monitoreo invasivo y no invasivo en pediatra.
Good to see #motivation in addition to #competence, #honesty & #reliability.
It always bothered me that #sociopaths could pass Onora's three tests of #trustworthiness*; they can be entirely #competent, brutally #honest & (predictably) #reliable but...
_
*ted.com/talks/onora_o_…
It always bothered me that #sociopaths could pass Onora's three tests of #trustworthiness*; they can be entirely #competent, brutally #honest & (predictably) #reliable but...
_
*ted.com/talks/onora_o_…
...I still wouldn't necessarily feel comfortable #trusting them. (The same applies to corporate entities - some possibly even more so.)
@medConfidential's formulation - #consensual, #safe and #transparent - addresses a subtly different problem, which is that NO system will...
@medConfidential's formulation - #consensual, #safe and #transparent - addresses a subtly different problem, which is that NO system will...
...always be 100% #trustworthy, and certainly not 100% #trusted - given #trust is ALWAYS 'in the eye of the beholder', and NEVER a property of a system.
#Governance and #accountability are key, of course. And maybe this time, we'll actually get what is #needed - rather than...
#Governance and #accountability are key, of course. And maybe this time, we'll actually get what is #needed - rather than...
Hi, @BHFDataScience! Please could you point me to a copy of your letter that is reported here:
theguardian.com/science/2021/j…
I've checked your website, but I can't seem to find a copy:
hdruk.ac.uk/helping-with-h…
theguardian.com/science/2021/j…
I've checked your website, but I can't seem to find a copy:
hdruk.ac.uk/helping-with-h…
Ah, no worries - I see it now. You tweeted a link to it, and I see it is on @HDR_UK's website:
hdruk.ac.uk/news/nhs-digit…
On reading your letter, @medConfidential would heartily agree with paragraphs 1, 3 and 5...
hdruk.ac.uk/news/nhs-digit…
On reading your letter, @medConfidential would heartily agree with paragraphs 1, 3 and 5...
On paragraph 3, we very much agree that #trustworthy use of patient data for #ethically-approved #research is good.
But not ALL intended uses of #GPDPR *are* trustworthy, as @NHSDigital's own data release registers confirm:
theysolditanyway.com
But not ALL intended uses of #GPDPR *are* trustworthy, as @NHSDigital's own data release registers confirm:
theysolditanyway.com
IMPORTANT JOB! 👇
…blicappointments.cabinetoffice.gov.uk/appointment/th…
Having abolished #NIGB in 2012, following #caredata & #IIGOP's 1st report in 2014, the Gov't was forced to appoint a #NDG; it took 4 more YEARS to make the National Data Guardian for Health & (only Adult) Social Care a statutory role...
…blicappointments.cabinetoffice.gov.uk/appointment/th…
Having abolished #NIGB in 2012, following #caredata & #IIGOP's 1st report in 2014, the Gov't was forced to appoint a #NDG; it took 4 more YEARS to make the National Data Guardian for Health & (only Adult) Social Care a statutory role...
... something for which @medConfidential had advocated since the #CareAct2014: medconfidential.org/wp-content/upl… and subsequently, e.g. medconfidential.org/wp-content/upl… and medconfidential.org/wp-content/upl…, until @Jochurchill4's Bill was passed.
So, while we aren't part of the formal process, we do take...
So, while we aren't part of the formal process, we do take...
...a great & close interest in the role & Office of #NDG, and look forward to working with whoever is appointed to follow Dame Fiona, in helping ensure EVERY use of patients' & service users' data is #consensual, #safe & #transparent.
Here's the ad again: …blicappointments.cabinetoffice.gov.uk/appointment/th…
Here's the ad again: …blicappointments.cabinetoffice.gov.uk/appointment/th…
Unclear why the @guardian would lowball #COVID19 deaths ("one in 20"?) across the #SocialCare sector here:
theguardian.com/society/2020/j…
Why use out-of-date, back-of-a-fag-packet guesstimates when we have actual figures? 👇
13.6% is one in seven people.
*ONE IN SEVEN*, not 1 in 20!
theguardian.com/society/2020/j…
Why use out-of-date, back-of-a-fag-packet guesstimates when we have actual figures? 👇
13.6% is one in seven people.
*ONE IN SEVEN*, not 1 in 20!
While we're on the topic, @BorisJohnson's pledge 👇 on becoming PM failed to even appear in his 2019 manifesto.
@MattHancock's letter of 6 March 2020 showed @10DowningStreet's "plan" didn't even exist:
So, with #trust collapsing:
homecareinsight.co.uk/pm-not-trusted…
@MattHancock's letter of 6 March 2020 showed @10DowningStreet's "plan" didn't even exist:
So, with #trust collapsing:
homecareinsight.co.uk/pm-not-trusted…
Let's be clear what's needed ain't just another "centralised system” (i.e. another costly care.data-style debacle) but a #coherent, #interoperable, #consensual, #safe & #transparent 21stC #InformationSystem, to flow #DataThatCares along #CarePathways & show #stats we need to know
Interestingly, in a time of #COVID, with the capacity for hundreds to attend conference calls on many platforms, the online event appears to be "Sold Out".
Will be interested to hear how it went...
Meanwhile, @cdei's '#AIBarometer' is here:
gov.uk/government/pub…
Will be interested to hear how it went...
Meanwhile, @cdei's '#AIBarometer' is here:
gov.uk/government/pub…
On "knowledge barriers" in particular, public opinion on exploitation of their medical records is pretty well-mapped and consistent; asking slightly different questions to elicit the answers you'd like ain't gonna help much. (And asking 'em *during a pandemic* is redundant.)
Again on "#barriers" (a terribly negative framing, which makes #protections & #GoodPractice sound like deliberately erected impediments...) @cdei does name some very real #challenges here 👇
If #data use & #innovation isn't #consensual, #safe and #transparent it just won't fly!
If #data use & #innovation isn't #consensual, #safe and #transparent it just won't fly!
I get it, Shiro is a good guy and he'd never take advantage of Keith but what if...he did 😏
#sheith #nswf #nsfwsheith #ABO #ABOsheith #omegakeith #alphashiro #firstheat #dubcon #consensual also #cheathing whoops Shiro's kinda with Adam? Well, he was...
#sheith #nswf #nsfwsheith #ABO #ABOsheith #omegakeith #alphashiro #firstheat #dubcon #consensual also #cheathing whoops Shiro's kinda with Adam? Well, he was...
Also, disclaimer: In my AU's omegas have cunts bc that just makes sense to me but if that's not your cup of tea then feel free to click away now bc this is pure #filth
So I kinda imagine the following: it's Keith first year at the Garrison (so he's also probably #underaged /sorry for not tagging earlier) and he's opened up a to Shiro. How couldn't he? The older Alpha is so gentle, so caring and he doesn't treat Keith like a little kid.
1979. With The Great Goulet, Merv Griffin, and the Chuck Wagon Dog, ruling the Tournament of Roses Parade. We'd always wrap on Villa St for the afterparty and a 5-way with Joan Van Ark. #FlashbackFriday
#FlashbackFriday 1981. Here's the whole crew, The Great Goulet, Merv Griffin, the Chuck Wagon Dog and me on the links with Pam Ewing herself, the lovely Victoria Principal. It was a different time. #WhatHappenedToFun #consensual #innocent
#ThrowbackThursday 1974. Whenever he'd guest on Merv's show, Goulet liked to celebrate by dangling Phyllis Diller from a window ledge. That's my paw on her calf, with Merv and the Chuck Wagon Dog cheering her on. One talented lady. #WhatHappenedToFun
