Discover and read the best of Twitter Threads about #covid1in20
Most recents (7)
Young & healthy folks: I know the media has told you that you need to be safe to protect the high-risk around you from #COVID19 . But please, you must protect *yourself* also. Here's why – a thread:
The virus itself wasn’t a severe case. I was never hospitalized from it. 2/8
#postCOVID19 #MyalgicEncephalomyelitis
#postCOVID19 #MyalgicEncephalomyelitis
[Thread]
“An Open Letter to the COVID-19 Long Hauler Community From a Person with ME/CFS” by @CortJohnson
healthrising.org/blog/2020/07/2…
1/n
#longhaulers #LongCovid #covid1in20 #COVIDー19 #COVID19 #COVID #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME
“An Open Letter to the COVID-19 Long Hauler Community From a Person with ME/CFS” by @CortJohnson
healthrising.org/blog/2020/07/2…
1/n
#longhaulers #LongCovid #covid1in20 #COVIDー19 #COVID19 #COVID #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME
2/n
“The ME/CFS community with its knowledgebase, its research findings, its doctors, advocates and the patients who have been through it all, has much to contribute to the long haulers.”
#LongCovid #COVIDー19 #longneglected #LonghaulersUnite #MyalgicEncephalomyelitis
“The ME/CFS community with its knowledgebase, its research findings, its doctors, advocates and the patients who have been through it all, has much to contribute to the long haulers.”
#LongCovid #COVIDー19 #longneglected #LonghaulersUnite #MyalgicEncephalomyelitis
3/n
“You should know – and may already very well know – that many doctors have reacted to this kind of illness by denying it, by downplaying it, or by calling it psychological.”
#longhaulers #LongCovid #COVIDー19 #COVID19 #COVID #MEcfs #CFS #MyalgicE #ChronicFatigueSyndrome
“You should know – and may already very well know – that many doctors have reacted to this kind of illness by denying it, by downplaying it, or by calling it psychological.”
#longhaulers #LongCovid #COVIDー19 #COVID19 #COVID #MEcfs #CFS #MyalgicE #ChronicFatigueSyndrome
#LongCovid #covid1in20 the #mecfs community needs your help! For decades, ME patients have been left permanently disabled (wheelchairs, bedridden) by grades exercise therapy. Fir decades we gave reported these harms and asked for the treatment to be removed 1/
from the NICE guidelines. In 2017 NICE finally agreed to review the current guidelines which were 10 years old at the time. The new guidelines won't be published until 2021. We have been asking NICE since 2017 to add a warning to the front page of the ME/CFS treatment 2/
guidelines, to warn in the meantime that GET can cause harm to ME/CFS patients. We have sent multiple stories & evidence from thousands of patients who have been made much worse by GET, and asked multiple times for NICE to issue a warning to prevent further harms. 3/
For decades, post-viral physical symptoms have been trivialized as psychological. Based on shaky empirical grounds, people have been left with CBT as their only treatment option. Now it is COVID19 long haulers’ time to be told “it’s all in their heads.” #LongCovid #covid1in20 1/
Many of those infected by COVID19 don’t fully recover and physicians call for research into the causes, which we currently know very little about. However, some psychotherapists have already attributed it to long haulers being “more prone to distress” shorturl.at/wLSYZ 2/
The solution? Cognitive Behavioral Therapy! Don’t get me wrong. As a psychologist, I have no doubt that many people (ill and not ill) can profit from CBT. But it’s stunning that some already assume it can cure medical conditions that we still know very little about. 3/
#Covid1in20 #LongCOVID update!
Week 16 here. Was diagnosed with post-COVID postural orthostatic tachycardia syndrome (POTS) today. Cardiologist said I'm the first patient she's seen with post-COVID symptoms, but wasn't surprised.
Week 16 here. Was diagnosed with post-COVID postural orthostatic tachycardia syndrome (POTS) today. Cardiologist said I'm the first patient she's seen with post-COVID symptoms, but wasn't surprised.
She'd been anticipating an increase in patients suffering from dysautonomia after having COVID.
My symptoms have evolved to tachycardia, orthostatic intolerance, light-headedness, brain fog, extreme fatigue, shortness of breath, chest pain and heart palpitations.
My symptoms have evolved to tachycardia, orthostatic intolerance, light-headedness, brain fog, extreme fatigue, shortness of breath, chest pain and heart palpitations.
The hope is, because this is post-viral, it will phase out in time. There's also a possibility that it will be with me for the rest of my life; only time will tell. The best way I can help myself is accept this as my new normal and give my body the hydration and rest it needs.
*URGENT* A plea from an ITU doctor. Write to your MP to raise awareness of #LongCovid #covid1in20 #covid1in10 cases and call for research and support... a thread.
I am an ITU doctor and have been unwell for nearly 13 weeks. As a doctor, I feel that I have a
I am an ITU doctor and have been unwell for nearly 13 weeks. As a doctor, I feel that I have a
responsibility to help bring #LongCovid to the attention of politicians and the medical and scientific communities. Please write to your MP with your concerns and share the attached information if helpful. Thank you to Baroness Bennett @natalieben and @jamesowild for their help
so far.
I am calling for the Government to:
1) Establish a scientific approach to the study of patients undergoing prolonged COVID-19 symptoms to: a) Establish the number of people affected
b) Investigate the cause of this
c) Investigate possible treatments
I am calling for the Government to:
1) Establish a scientific approach to the study of patients undergoing prolonged COVID-19 symptoms to: a) Establish the number of people affected
b) Investigate the cause of this
c) Investigate possible treatments
Die übliche Darstellung der Verläufe von #COVID19 ist zu zweidimensional: am Ende ist man NICHT entweder gesund oder tot.
Viele Pathogene können zu schweren chronischen Leiden wie #MECFS führen: Diese Patienten überleben den akuten Infekt, verlieren aber trotzdem ihr Leben. 1/
Viele Pathogene können zu schweren chronischen Leiden wie #MECFS führen: Diese Patienten überleben den akuten Infekt, verlieren aber trotzdem ihr Leben. 1/
Eine 2006 in Australien durchgeführte Studie hat gezeigt, dass ganze 11% der an Pfeifferschem Drüsenfieber, Q-Fieber oder Ross-River-Fieber Erkrankten sechs Monate nach der akuten Infektion an #MECFS litten. 2/
ncbi.nlm.nih.gov/pmc/articles/P…
ncbi.nlm.nih.gov/pmc/articles/P…
Nach dem Ausbruch von SARS in 2003 entwickelten viele Patienten ein sog. "post-SARS-Syndrom", das symptomatisch weitgehende Übereinstimmung mit #MECFS aufweist. 3/
bmcneurol.biomedcentral.com/articles/10.11…
bmcneurol.biomedcentral.com/articles/10.11…
