Discover and read the best of Twitter Threads about #cpps
Most recents (8)
What’s the deal w/ people in #pain using #opioids? (Read entire thread.) We are not “drug addicts.” We are physically DEPENDENT on our meds, which we need to function w/out pain (i.e, to function). Physical dependence occurs on heart meds & #antidepressants too. #ThisIsUs
And I am not trying to stigmatize #addiction here. But rly, let’s talk; chronic pain patients (#CPPs) have been forced to KILL themselves due to untreated pain, due to bad #policy, due to the #stigma, foolishness & financial incentives of others. This has a name: opiophobia…
If you took me off ALL opioids, I (like most #painpatients) would go through ugly opioid #withdrawals (and make sure to poop/puke on YOU for causing them)! 😂
And even after months of “abstaining,” and withdrawals disappearing, I would be “clean” in the eyes of the world, but…
And even after months of “abstaining,” and withdrawals disappearing, I would be “clean” in the eyes of the world, but…
Update: My doctor lowered my pain meds AGAIN last month KNOWING how poorly I am tolerating this forced wean. Despite being forced off my meds they made me see the "#addiction doctor" to assess my "risk" of addiction & that appt was yesterday.
During that visit he actually said "I need to just get used to the #pain & I'll be fine", he said " everyone's going this #opioid free route & you have to deal with it" & a few other absurd things. I was literally in tears the entire appointment...
He asked if I wanted to "see someone & possibly get meds" because I was in tears from pain, feeling afraid, unheard & ignored, to which I explained that this is NOT an emotional or mental issue that it's purely a horrific pain & suffering issue... I politely declined the help.
What if I decided to file a lawsuit (against ??) for the RIGHT to choose to die w/ dignity BECAUSE I am being DENIED the RIGHT to treat my severe intractable pain w/ #pain meds? Hang w/ me for a sec.. #ipp #cpps 
I DON'T want to die! I also DON'T want to be forced to live a life of relentless suffering w/o pain meds. Would a #HumanRightsLawsuit help fight for our rights for adequate pain control? #PainManagement
@ACLU @acluohio
@ACLU @acluohio
How can they legally deny me the right to die w/ dignity (& on my own terms) but they are also trying to FORCE me to LIVE the rest of my life in horrible excruciating #IntractablePain without the Rx #opioids that I needed & have taken for 19 years to function? @ACLU
@acluohio
@acluohio
I WISH that I had good news to share with you all but sadly I don't. The #palliativecare doctor said he only treats end of life or #cancer pain & I am once again thrown back in the water like nasty stinky unwanted chum.
He said that I shouldn't be removed off Rx #opioids & in his opinion the the forced wean is too aggressive. I happened to have a horrible #crps attack so he got to literally see what that looks like. It's not pretty.
WHY are patients forced to go through this much shit in order to get basic care? I 100% feel discriminated against & it isn't ok. He did say that he was going to call my doctor tomorrow & speak to them directly to see if he can convince them to keep me on or adjust my meds.
@Shasta_Rayne 1/Bottom line-we KNOW that the '#opioidcrisis' wasn't caused by MDs treating pain. We KNOW that it's primarily younger, often males, ODing on street drugs while #CPPs aren't ODing & are often older. We KNOW the PDMP is a drag net & DEA/LE involvement is why MDs are afraid to RX.
@Shasta_Rayne 2/We KNOW state Standards of Care were drafted around CDC 'guideline' with DEA scrutiny as their backdrop for policy making. We listened in as they changed pain tx standards with that in mind.
"How much & for how long can I rx my post surgical pt without DEA coming down on me."
"How much & for how long can I rx my post surgical pt without DEA coming down on me."
@Shasta_Rayne 3/We KNOW HHS & the NPS has created a tragic mess for pain patients even though this OD issue was NEVER REALLY ABOUT PRESCRIBING; and we know why.
Money.
At some point, even if it was initially believed to be a public safety issue, it became a money issue when the truth came out.
Money.
At some point, even if it was initially believed to be a public safety issue, it became a money issue when the truth came out.
@WagnerUriel1 @slpng_giants_pt @oatila Estar alerta também p/ações igualmente perigosas q passam desapercebidas e q influenciam fortemente os comportamentos de risco e #letalidade por cooptação, baseadas na oferta de #produtos e/ou #serviços ancorados) em #prazer (pacotes #viagens) ou #medo (#religião, #livros) ex.:👇🏾
@WagnerUriel1 @slpng_giants_pt @oatila Caso 1) #Pacotes de #viagens:
Como pode o pessoal de @123milhas seguir "convidando" as pessoas a escolher seu próximo roteiro de #viagem, nos seus #comerciais de TV (ex.: no canal #SpaceHD #654 na #netclaro) em pleno pico de #pandemia de #covid19, como se não houvesse amanhã, ...
Como pode o pessoal de @123milhas seguir "convidando" as pessoas a escolher seu próximo roteiro de #viagem, nos seus #comerciais de TV (ex.: no canal #SpaceHD #654 na #netclaro) em pleno pico de #pandemia de #covid19, como se não houvesse amanhã, ...
@WagnerUriel1 @slpng_giants_pt @oatila @123milhas como se a vida atual fosse uma #viagem+#festa? Não é à toa que o #filme escolhido por eles @SPACE_Brasil para este domingo (21/03) é “Anjos e Demônios” com Tom Hanks. Só compreensível (mas não aceitável) se o anúncio for destinado a #negacionistas, #bolsomínions e #genocidófilos
I'm a chronic pain patient or #CPP, who's disabled. Now presenting an insanely long thread abt the way we're mistreated and misrepresented:
I like med dramas like New Amsterdam (& Grey’s Anatomy, ER). But as a #CPP, after last week’s episode I’m not sure I can keep watching. /1
I like med dramas like New Amsterdam (& Grey’s Anatomy, ER). But as a #CPP, after last week’s episode I’m not sure I can keep watching. /1
All these shows are overly-dramatic (soap operas?), taking once-in-a-lifetime cases or insane accidents and pretending stuff like that happens nonstop. It doesn’t.
They like to dabble in current events. I’ve even had an article I’ve written for the Trib featured as a storyline 2/
They like to dabble in current events. I’ve even had an article I’ve written for the Trib featured as a storyline 2/
on Chicago Med! But New Amsterdam this week took something I deal with every day of my life & didn’t fictionalize it – they portrayed it as real as it is – and then relentlessly attacked chronic pain patients in this country.
Premise: The director wanted something monumental 3/
Premise: The director wanted something monumental 3/
Time for "What's My #ChronicPain Personality Disorder?"
Does continual #pain make you suspect others aren't on your side? Does severe pain make you detach from relationships or restrict your emotions? You have a CLUSTER A Disorder! / thread
Does continual #pain make you suspect others aren't on your side? Does severe pain make you detach from relationships or restrict your emotions? You have a CLUSTER A Disorder! / thread
When you're in #pain, do you feel excessively emotional & seek attention? ... Congratulations! You're histrionic! (Cluster B)
