Discover and read the best of Twitter Threads about #creakychats

Most recents (3)

A2. I’m not sure people get that it’s a category of illness, that sometimes it could go in for decades or life. #CreakyChats
A2. For individual illnesses, absolutely.

There’s the stigma of you’re just lazy or you’re not trying hard enough or there’s a miracle cure out there that you’re not using because you’re stubborn. Etc
I am stubborn. That’s why I’m still alive.
Read 4 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
A3. From home I observed #ACR18 featuring patient interviews like the one with @DawnMGibson.

It gave me so much hope & vidation about #painsomnia. #CreakyChats
A3. Iearned about patient posters & through community representatives who attended, that researchers and doctors were observing and listening. #CreakyChats
A3. That meant so much to me. I'm still thinking about it and browsing and observing material from the #LupusChat attendees, @CreakyJoints and @DawnMGibson.

What a well timed moment to be be newly diagnosed with Arthritis & Fibro.

#CreakyChats
Read 3 tweets

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