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A warning: this is a thread, it is only a thread.
It is a thread about two guys: Pete and Brian.
It is also a thread about millions of others who are fighting races against time.
It is a thread about possibility, loss and closure.
It is a thread about life.
It is a thread about two guys: Pete and Brian.
It is also a thread about millions of others who are fighting races against time.
It is a thread about possibility, loss and closure.
It is a thread about life.
When @PeteFrates3 passed away last week I felt like I had lost a friend. While he was with us, Pete and I actually never met. I had seen enough videos and read enough stories to know, however, that his fight was my fight.
Young athlete.
Young father.
Driven to defy the odds.
Young athlete.
Young father.
Driven to defy the odds.
Unwilling to simply accept the hand he was dealt.
Blessed with an amazing family that would move heaven and earth for him.
When I first heard the letters ALS come out of my doctor's mouth my first thought was a hopeful one. Not because I knew anything about it. I didn't.
Blessed with an amazing family that would move heaven and earth for him.
When I first heard the letters ALS come out of my doctor's mouth my first thought was a hopeful one. Not because I knew anything about it. I didn't.
I'm Brian. At 37 I was diagnosed with ALS. Told I should get ready to die.
Then I met Pete, Pat, Sandy, Cory, Sarah, O.J., Steve, Ady and thousands of others told the same thing.
And a funny thing happened: we decided not to listen. We decided to fight.
Then I met Pete, Pat, Sandy, Cory, Sarah, O.J., Steve, Ady and thousands of others told the same thing.
And a funny thing happened: we decided not to listen. We decided to fight.
Then another funny thing happened, you and thousands of others decided to join us.
Tomorrow we take to Times Square to push for #curesforall.
Make no mistake: tomorrow is not the end of our fight. Instead, it is a huge step forward towards realizing the day when...
Tomorrow we take to Times Square to push for #curesforall.
Make no mistake: tomorrow is not the end of our fight. Instead, it is a huge step forward towards realizing the day when...
A doctor tells a 37 year old you have ALS, Parkinson's, MS, Huntington's, but don't worry, we can treat it.
Life as it is today is not how life must be forever. Here's to changing the world.
iamals.org/curesforall
Life as it is today is not how life must be forever. Here's to changing the world.
iamals.org/curesforall
The fight to cure ALS is a fight to get people to care.
When you or someone you love is diagnosed you care. You care with all of your heart, all of your being.
Before then, most don't. Not because of apathy, but because their care is focused elsewhere.
When you or someone you love is diagnosed you care. You care with all of your heart, all of your being.
Before then, most don't. Not because of apathy, but because their care is focused elsewhere.
Their care is focused on putting food on the table, on their marriage, their kids, their families, any of the thousands of things that tug at our hearts and minds each day.
Among these thousands of things, all of us--ALL of us--invest our care in someone who is sick or has died.
Among these thousands of things, all of us--ALL of us--invest our care in someone who is sick or has died.
I can say this with certainty because everybody has lost somebody.
I lost my father at 21. He was 54 when he died.
I lost one of my best friends at 26. She was 25 when she died.
I have a long list--just like you do--of those who left this life too early.
I lost my father at 21. He was 54 when he died.
I lost one of my best friends at 26. She was 25 when she died.
I have a long list--just like you do--of those who left this life too early.
