Discover and read the best of Twitter Threads about #defeatdipg
Most recents (2)
At DIPG Advocacy Group Congressional Briefing for HRes 114 (dipgadvocacy.org) to designate May 17 as National DIPG awareness day. DIPG is the deadliest childhood cancer. So many amazing families, kids, doctors and advocates, united in grief and hope. I’m here for Elijah. 
Go to dipgadvocacy.org to find out more about DIPG and pediatric brain cancer and call your Congressional Representatives and encourage him/her to co-sponsor. Raising awareness is key to increasing research funding to #DefeatDIPG.
Here is a link: facebook.com/defeatdipg/vid…
1/ Normally don’t promote movies but will this one: its a documentary about the 501st Battalion, The international community of Star Wars costume players, and the amazing work they do to support children with cancer: amazon.com/Heroes-Empire-…
2/ When my son Elijah was sick with DIPG (the rarest, deadliest childhood brain cancer), members of the 501st Battalion in the DC area (none of whom I had ever met) took an entire day and came to his school to celebrate him after being contacted by the parent of a school friend.
3/ When he died, members of the 501st attended my son’s funeral and served as an honor guard. It was the first time some of his classmates - still grieving - had laughed or smiled in weeks.
