Discover and read the best of Twitter Threads about #disabledpeopletoldyou
Most recents (6)
@mssinenomine Was reminded today of my competitive swimming days when coach would make us tread water for a very long time. Then as extra “punishment” and competition would have us tread with these 10 lbs bricks. They were heavy and awkward enough that you’d have to hang on with both hands.
@mssinenomine Hands free treading is tough enough to keep your head above water, esp when you’re tired and your leg muscles are screaming. Load me down w weight, it ain’t long before I’m sucking more water than air, trying to keep my barely above water face, positioned just right to get oxygen
@mssinenomine There comes a point that it does not matter how hard you try, how strong you are, even the best swimmer either gets pulled under and sinks. Or has to drop the brick and get out of the water to get air. Either way, you lose.
🧵 I would just like to say as someone who recently decided that I would try to qualify for #MAiD. That #C7 expanding state sanctioned sUicIDe to PWD is predatory and fucked.
Do I wanna die bc I’m in too much under-treated pain and drs can’t/won’t diagnose or treat me? #NEISvoid
Do I wanna die bc I’m in too much under-treated pain and drs can’t/won’t diagnose or treat me? #NEISvoid
Or do I want to die bc my life is falling apart? Bc everywhere I turn there is emotional trauma, grief and a crush of overwhelm? Bc I *feel* trapped by circumstances and poverty — by broken and cruel systems and people?
It’s difficult to imagine how this anti-science anti-vax rally could have come to be if hydroxychloroquine disinformation hadn’t kicked off some these #DisinformationDoctors careers — at the expense of chronically ill people. #DisabledPeopleToldYou #MyDisabledLifeIsWorthy
Important thread anticipating the Jan 23 Super Not Anti-Vax Rally:
this weird little rally is tomorrow 🙄 who’s tryna watch a livestream with mimosas with me…?
How many times do I have to scream “they always were”? Hydroxychloroquine disinfo has incredible staying power, to the extent that I *continue* to hear abt HCQ supply issues from fellow rheumatic patients. #DisabledPeopleToldYou this was never in the past. #MyDisabledLifeIsWorthy
It is painful to me how accounts with major followings (not necessarily OP, am speaking generally) repeatedly write-off or joke about hydroxychloroquine when the next shiny covid boondoggle makes headlines, & then become shocked when its ongoing usage inevitably resurfaces.
Meanwhile autoimmune people continue to bear the stigma that our essential daily medication has garnered on top of the physical consequences supply issues cause. #MyDisabledLifeIsWorthy of sustained attention to this ongoing problem. #HighRiskCOVID19
vm.tiktok.com/TTPdrnJuGr/
vm.tiktok.com/TTPdrnJuGr/
Making comparisons between hydroxychloroquine & ivermectin is warranted in some situations, but overwhelmingly it seems to be done without nuance. This perpetuates the invisibile harm autoimmune people continue to bear as our essential medication— HCQ— is once again in shortage.
I don’t say all of this for some woe is me oppression olympics bs or whatever you care to project— I say it because the difference matters. The severity of the harm done to chronically ill and disabled people is more than worth mentioning, it should be centered. #HighRiskCovid19
Don’t just act as joker or stenographer of the horrors we’re all living through— make the realities clear. Who is harmed by disinformation and how? Was the harm ever addressed? No? Why? What precedent does this set? What doors does it leave open? Do better. #DisabledPeopleToldYou
I looked at a calendar this morning and realized that it’s April 3rd. Thread.
I have #LongCovid: more details of my story are in my pinned thread, linked below. My constant migraine started when I woke up on Ocober 3rd, so today is my six-month anniversary. Lots of feelings. /1
I have #LongCovid: more details of my story are in my pinned thread, linked below. My constant migraine started when I woke up on Ocober 3rd, so today is my six-month anniversary. Lots of feelings. /1
@bennessb in her as-always infinite wisdom somewhat prepared my for this by asking earlier this week if I mark chronic illness anniversaries, and how. Then, I mostly thought about how I interact with the anniversary of my knee surgery, which returned me to walking and dancing. /2
Like I said, I had a lot of feelings on looking at April 3rd on a calendar this morning. But I’m choosing to (try to) focus on how much better I (currently) am than I was in the fall, and how much less pain I’m in day to day, and how much more I can do. /3
