Discover and read the best of Twitter Threads about #ePatient
Most recents (3)
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd So much truth - IMO this flip to consumerism WITHOUT full participation of both clinical experts and patient community leaders in creating health literacy resources for humans is root cause of much "I did my own research" nonsense now driving medical misinformation online.
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd What I mean by that is "the academy" (in this instance the @AmerMedicalAssn who I give fish-eye to on the regular over their K St lobbying in service of status quo in US healthcare spend, but I digress) has missed eleventy-million-and-five opportunities to ... /2
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn Team up with patient community leaders savvy in comms, community organizing, and *science* to build health literacy resources that can be deployed all over ever'where to help humans be prepared to made decisions about their/their families' health. /3
"As the meaning of the term has expanded, some #ePatients have developed a high level of expertise & in turn have taken a leadership role within the ePatient movement. @StanfordMedX has coined the term ePatient scholar to describe these leaders...." /1
ojin.nursingworld.org/mainmenucatego…
ojin.nursingworld.org/mainmenucatego…
Nelson, R., (September 13, 2016) "Informatics: Empowering ePatients to Drive Health Care Reform - Part I" OJIN: The Online Journal of Issues in Nursing Vol. 21, No. 3.
ojin.nursingworld.org/mainmenucatego… /2
ojin.nursingworld.org/mainmenucatego… /2
"The leaders introduced below demonstrate what equipped, enabled, empowered, & engaged patients can and will do to gain a proactive role in managing their healthcare. They demand ‘Give me my own damn data’ & even point out that the data are often dirty." /3
You going to Health Datapalooza next month? YOU WANT TO, you do! It's never just a nerd herd, and this year you'll get #cyberwoke. Settle in, I'll spin the tale. #HDPalooza #epatient #datarights 
First, you need to know that as awesome as social media is for #epatients, #research teams, #healthpolicy wonks, #datascience peeps, and other members of the #HDPalooza tribe, there IS a dark side. #cyberwoke #dataprivacy #HumanRights
