Discover and read the best of Twitter Threads about #endALS
Most recents (4)
A non-@verified thread 🧵
I would like to tell my new followers & friends what I’m all about:
Starting with my absolutely free, very excellent e-cookbook #IsolationBaking on @AppleBooks for Apple/Mac/iPad users.
(I'm a cookbook author & food writer)
books.apple.com/us/book/id1510…
I would like to tell my new followers & friends what I’m all about:
Starting with my absolutely free, very excellent e-cookbook #IsolationBaking on @AppleBooks for Apple/Mac/iPad users.
(I'm a cookbook author & food writer)
books.apple.com/us/book/id1510…
For those of you who are PC/android, here’s the pdf version of my e-cookbook #IsolationBaking
drive.google.com/file/d/1HctkXg…
drive.google.com/file/d/1HctkXg…
Food writer...recipe developer...I also wrote the only cookbook featuring the magnificent orange... and the recipes are fabulous and astonishing!
amzn.to/2L6fCPE
(sadly Amazon because my publisher has not renewed publication)
amzn.to/2L6fCPE
(sadly Amazon because my publisher has not renewed publication)
If you talk only of defeat, expect to lose. If you promise great victories without any basis in fact, expect to be proven wrong. If, however, you put in the work each day to change the world, you may just succeed.
Now if you will allow a moment on my soapbox I want to talk ALS.
Now if you will allow a moment on my soapbox I want to talk ALS.
For decades the fight against ALS languished. Doctors managed a patients death. ALS organizations carved up the community into my patients (read: donors) and yours. Pharma saw ALS as too risky. And the world knew little of our fight. /2
This instilled a language of defeatism into the fight. Doctors told patients at the 1st appointment there was nothing they could do. We expected drug trials would fail and we settled for leaders who pushed us to leave our estates to their org so we could help future patients. /3
@SteveFDA I am 61 years old & was diagnosed with ALS on February 14, 2020. I had always been healthy & led a healthy lifestyle. No drugs, no smoking & drink alcohol only socially. I have been robbed of my retirement after working for 45 years & my many plans for my golden yrs.
@SteveFDA I was going to get on a clinical trial immediately upon my diagnosis, but because of the Covid-19, it was put on hold, and is still on hold. Since that time, I have become very weak and unstable & my voice has been affected.
@SteveFDA ALS can strike anyone, at any time. It could strike you, or a family member. I never dreamed I would be struck with such a horrific & debilitating disease before I was able to enjoy my retirement, which I have been looking so forward to.
Wired article on the science behind @DashGenomics, the only Alzheimer's risk analysis on the Market based on DNA beyond APOE!
wired.com/story/polygeni…
Visit us bit.ly/DashWhy 👈
👆
#BeyondAPOE
#Alzheimers
#EndALZ
wired.com/story/polygeni…
Visit us bit.ly/DashWhy 👈
👆
#BeyondAPOE
#Alzheimers
#EndALZ
⚡️ Summary of the benefit and risk of hormone replacement therapy (HRT)
- research linked long-term use of HRT with a small increased risk of #Alzheimers
- taking HRT for a short period of time should be fine.
twitter.com/i/moments/1103… …
Learn Alz risk bit.ly/DashWhy
- research linked long-term use of HRT with a small increased risk of #Alzheimers
- taking HRT for a short period of time should be fine.
twitter.com/i/moments/1103… …
Learn Alz risk bit.ly/DashWhy
⚡️ “New Risk Genes for #Alzheimers”
Coverage and comment from media and scientists on newly discovered risk genes for Alzheimer's
twitter.com/i/moments/1101… …
Visit us at bit.ly/DashWhy 👈
and Learn personalized #Alzheimers risk #BeyondAPOE with your DNA
@DashGenomics
Coverage and comment from media and scientists on newly discovered risk genes for Alzheimer's
twitter.com/i/moments/1101… …
Visit us at bit.ly/DashWhy 👈
and Learn personalized #Alzheimers risk #BeyondAPOE with your DNA
@DashGenomics
