Discover and read the best of Twitter Threads about #epatient

Most recents (2)

@DrSidMukherjee Wild idea: what about rise of oncology patient advocate (individuals, not orgs) -led communities & activities empowered/fueled by the tools of social media, and their effect on clinician/researcher/pt collaborations/research direction?
cf @GRASPtweets at #sabcs19; @COLONTOWN
@DrSidMukherjee @GRASPtweets @COLONTOWN In 1994 at my 1st dx was given H. Benjamin’s “From Victim to Victor” mentioning concept of active patient. Fast fwd thru 2nd & 3rd dxs and I find myself part of the #ePatient mvt. Discover power of twitter hashtags to unite equal multi-stakeholders in convos that (still) lead...
@DrSidMukherjee @GRASPtweets @COLONTOWN ... to collaborations, be they via #bcsm (@GRASPtweets @MBC_Project) #lcsm (@ros1cancer @EGFRResisters), #btsm, #gyncsm, #crcsm, etc. Individual advocates collaborating as equals with cancer scientists & clinicians, giving TRUE meaning to the “pt-centered” buzzword.
Read 7 tweets
You going to Health Datapalooza next month? YOU WANT TO, you do! It's never just a nerd herd, and this year you'll get #cyberwoke. Settle in, I'll spin the tale. #HDPalooza #epatient #datarights
First, you need to know that as awesome as social media is for #epatients, #research teams, #healthpolicy wonks, #datascience peeps, and other members of the #HDPalooza tribe, there IS a dark side. #cyberwoke #dataprivacy #HumanRights
Read 12 tweets

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