Discover and read the best of Twitter Threads about #ethically

Most recents (3)

If @NHSEngland claimed that, NHS England LIED. (Not for the first time...)

The original @PalantirTech contract is here:

cdn-prod.opendemocracy.net/media/document…

And the story behind how it was awarded is here:

thebureauinvestigates.com/stories/2021-0…

#WatermelonCocktails
If @NHSEngland & @NHSX want to talk about #transparency and proper #process, then why haven't they published the data release register for the #COVIDDataStore from which @PalantirTech and others are fed?

We've been asking for it since March 2020; we reiterated & escalated our...
..request in writing in June 2020; colleagues at @useMYdata made an identical request in October 2020:

usemydata.org/resources/use%…

and @NHSEngland's Chief Data & Analytics Officer told #CitizensJuries in March, April and May 2021 that she could share the #COVIDDataStore...
Read 6 tweets
Hi, @BHFDataScience! Please could you point me to a copy of your letter that is reported here:

theguardian.com/science/2021/j…

I've checked your website, but I can't seem to find a copy:

hdruk.ac.uk/helping-with-h…
Ah, no worries - I see it now. You tweeted a link to it, and I see it is on @HDR_UK's website:

hdruk.ac.uk/news/nhs-digit…

On reading your letter, @medConfidential would heartily agree with paragraphs 1, 3 and 5...
On paragraph 3, we very much agree that #trustworthy use of patient data for #ethically-approved #research is good.

But not ALL intended uses of #GPDPR *are* trustworthy, as @NHSDigital's own data release registers confirm:

theysolditanyway.com
Read 11 tweets
So @cabinetofficeuk (@GDSTeam) has updated the #DataEthicsFramework for government and the public sector today - the first version of which was published by @MattHancock in 2018, when he was at @DCMS:
gov.uk/government/pub…

Two obvious questions:

1) Where are the published...
...ratings for all of the government & public sector data projects / programmes that have been started since 2018?

A framework that neither demands nor provides publicly visible outputs surely fails on two of its own 'overarching principles'; #transparency and #accountability...
2) Other than "consult with your team leader", what happens when a project 'fails' the framework - say a national programme that doesn't do a #DPIA, or a body that employs a #discriminatory #algorithm?

An 'ethics' framework without meaningful #consequences ain't #ethical at all.
Read 6 tweets

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