Discover and read the best of Twitter Threads about #fblc
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Three years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing grassroots movement of people, who weren't recovering from covid. Across the world, we're still fighting for research and treatment of our disease 
#LongCovid as a disease concept first grew out of a collective, grassroots, international, patient-driven movement of Covid survivors in early—mid 2020. As a disease entity, LC was recognized by the WHO in August 2020 thanks to intense patient advocacy
sciencedirect.com/science/articl…
sciencedirect.com/science/articl…
Today Covid—Long Covid are—is among the most studied diseases in medical history. A search on the repository for scientific papers PubMed for *covid gives over 355,000 results. Papers include vast research on the long-term effects of SARS-CoV-2 infection
pubmed.ncbi.nlm.nih.gov/?term=Covid
pubmed.ncbi.nlm.nih.gov/?term=Covid
My 3rd Covid anniversary. The day my life was ripped away from me. My “mild” case that I thought I easily recovered from, until a few weeks later when it came back with a vengeance and never left again. /1
#longcovid #fblc #MedTwitter #covid19
#longcovid #fblc #MedTwitter #covid19
I had never spent a night in the hospital before and that first year I spent 3 weeks. I went to the emergency room 4 different times, begging to know what was wrong with me. One of those times, when my oxygen dropped into the 70s every time I stood up and I was admitted, /2
my husband and I said goodbye genuinely thinking it would be the last time. I went from working out 4 days a week and being a smart, energetic, go getter, to a person who couldn’t stand in the shower, couldn’t remember the name of basic things, couldn’t drive. Long stretches /3
ATTENTION FRIENDS! Can you help us reach our new goal?
We want to get to 150,000 signatures before March 15th 2023.
On March 15th, International #LongCovid Day, we want to take the campaign to Westminster!
We want to get to 150,000 signatures before March 15th 2023.
On March 15th, International #LongCovid Day, we want to take the campaign to Westminster!
It’s a big ask. We know. It means asking you to share this thread, contact your elected representatives, telling everyone you know, sharing this across social media. More than once. But we are about 39,000 off our goal and we think we can do it. #longcovid #pwLC #FBLC
It is pretty clear to us that there is a growing number of people who believe #keyworkers with #longcovid who are in difficult straits now are in this position because of their job. It’s obvious you all agree with @AppgCoronavirus recommendations about a compensation & pension
Long COVID Physio International Forum #LCPForum recordings from Day 1 are now available 💙 🧵
#LCPForum Day 1 open and welcome with @darrenabrown @PTPintcast @ThePhysiFro & Dr Richard Nielsen @RMUoHP
Tomorrow! We begin the Long COVID Physiotherapy International Forum #LCPForum! Before we get started in 1 day, we want to thank 🌟EVERYBODY🌟 supporting, involved and working behind the scenes. Thank you 🙏🏻 #LongCOVID #FBLC #GlobalPT
We also want to wish everybody a fantastic #worldPTday today, which on this day last year @WorldPhysio1951 provided #LongCOVID resources available in over 60 different languages longcovid.physio/quick-access
Registration is still open to join us live or access recordings on demand #LCPForum
longcovid.physio/forum
longcovid.physio/forum
In 2 days we begin the Long COVID Physio International Forum #LCPForum. We have an incredible lineup of speakers, so check out the full programme👇. There’s still time to register #LongCOVID #FBLC #GlobalPT
longcovid.physio/forum-programme
longcovid.physio/forum-programme
Two years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing, grassroots movement of people who weren't recovering from covid. Across the world, we were fighting for recognition and studying our own disease
🧵
🧵
#LongCovid is now one of most studied diseases in history. It's not "rare" or "mysterious". It was recognized by the WHO in August 2020 already, after an history-making meeting with advocates and patient-researchers. We have come that far.
theatlantic.com/health/archive…
theatlantic.com/health/archive…
And yet, this pandemic is a mass disabling event. Treatment options, open communication, and support for patients are still lagging behind. We will not stop fighting for the rights of people living with #LongCovid and other complex chronic diseases.
My solidarity to all healthcare professionals, including nurses, who contracted covid at work and are now living with #LongCovid. It is of paramount importance healthcare professionals, as well as other people living with Long Covid, are fully supported
As we have just passed #NursesDay it is important to consider how much talent and expertise can be lost, if optimal care and support pathways aren't implemented by providers and employers. Healthcare professionals are among the most hit by #LongCovid
The loss of healthcare expertise to #LongCovid is a huge hit for providers and new patients alike. Healthcare systems are under severe duress in this pandemic.
And, as usual, my solidarity to all sufferers beyond age, gender, and profession
And, as usual, my solidarity to all sufferers beyond age, gender, and profession
Thanks @LongDeutschland to let me know #LongCovid is now officially in the German Dictionary too, after other countries like the UK, US, and Italy
We've come a long way
A thought to all patients, advocates, patient-researchers, and allies who have been fighting for recognition 💙
We've come a long way
A thought to all patients, advocates, patient-researchers, and allies who have been fighting for recognition 💙
#FollowFriday tweet for the following hashtags for 10th March 2022:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
Follow everyone who Comments/Likes/Retweets this tweet.
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #Ukraine #SlavaUkraini
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
Follow everyone who Comments/Likes/Retweets this tweet.
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #Ukraine #SlavaUkraini
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'+' denotes follow back accounts.
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This is a #FollowBackFriday tweet for the following hashtags for 11th February 2022:
Follow everyone who Comments, Likes or Retweets this tweet.
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FBFriday #FBF #FollowFriday #FF #RejoinEU
Follow everyone who Comments, Likes or Retweets this tweet.
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FBFriday #FBF #FollowFriday #FF #RejoinEU
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'+' denotes follow back accounts.
To get your '+' mark or change your hashtag fill out the form bit.ly/3n453zq
To get your '+' mark or change your hashtag fill out the form bit.ly/3n453zq
This is a #FollowFriday tweet for the following hashtags for 3rd February 2022:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
Follow everyone who Comments, Likes or Retweets this tweet.
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #RejoinEU
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
Follow everyone who Comments, Likes or Retweets this tweet.
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #RejoinEU
Thanks to my last 12 Donors:
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@velocityblade+
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Watching new C19 infections turn into #LongCovid this week on Twitter has been difficult. I'm still shocked at how little most people know. Luckily, info on this illness exists, thanks to those who experienced it in earlier waves. I want to share some of that first-hand guidance:
In August, 2020 @theheatherhogan wrote about contracting C19 and being diagnosed with dysautonomia – a common diagnosis for a lot of folks with #LongCovid. She detailed her story in @autostraddle: autostraddle.com/the-soft-butch…
Also in August 2020, @mileswgriffis wrote a beautiful essay in @adventurevida about navigating the uncertainty of #LongCovid: adventure-journal.com/2020/08/living…. This article delves into fatigue, isolation, and cycling symptoms.
Policy makers should be talking more openly about #LongCovid
But, often, they wouldn't do it. The reason in my opinion is very simple. People would refuse any mass infection policy if they knew about the risks. Also, existing patients would become more vocal in asking for care
But, often, they wouldn't do it. The reason in my opinion is very simple. People would refuse any mass infection policy if they knew about the risks. Also, existing patients would become more vocal in asking for care
Pandemic policy has been generally being dictated by incompetence, short-term macro-economic thinking, and the needs of elite groups. The economic gains of a few have been put over the health and wellbeing of a multitude.
It's the same for debates over airborne transmission
It's the same for debates over airborne transmission
#LongCovid, recognition of covid real nature --- it's a SARS like disease not a "cold" --- and #covidisairborne have been three of the most contentious topics in pandemic awareness.
Failure in addressing these issues drove the disaster which costed us ~5--15 million lives
Failure in addressing these issues drove the disaster which costed us ~5--15 million lives
This is a #FollowFriday tweet for the following hashtags for 16th December 2021:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain
If you want to see all my tweets including my #Top1000 tweets go to my profile @SydesJokes and select 'Tweets & Replies'.
Or check the link twitter.com/SydesJokes/wit…
Or check the link twitter.com/SydesJokes/wit…
Retweet the main tweet for 50 Engagement Points.
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
sydesjokes.blogspot.com/2021/09/histor…
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
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PHASE 1 LAUNCH! New study reveals yawning gap in medical care for energy-impaired
thisiswellless.com
#pwME #NEISvoid #FBLC #LongCovidWork #LongCovidCosts #TreatLongCovid #CountLongCovid #miilionsmissing #HealthEquity #patientled #medtwitter #wellless
A THREAD >
thisiswellless.com
#pwME #NEISvoid #FBLC #LongCovidWork #LongCovidCosts #TreatLongCovid #CountLongCovid #miilionsmissing #HealthEquity #patientled #medtwitter #wellless
A THREAD >
Long-Covid visual report quantifies money, time, work and energy spent on the battle to get medical care, and introduces new language of the “well-less” to improve patient awareness and support.
@long_covid @longcovidwork @actionforme @chronicinclude #EDS #PoTS #postviral
@long_covid @longcovidwork @actionforme @chronicinclude #EDS #PoTS #postviral
![Image shows a new healthcare spectrum from Well[ness] throug](https://pbs.twimg.com/media/FGO9JzfWYAMZmtQ.png)
I tracked and analysed my own health interactions from 2020 across nine different self-data sources, including @BupaUK @Bupa , @LloydsBank , @timspector (Zoe Covid Symptom Tracking App(, email, SMS, mobile and calendar data #Datavisualization #selfanalytics #dataviz
This is a #FollowFriday tweet for the following hashtags for 9th December 2021:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain
If you want to see all my tweets including my #Top1000 tweets go to my profile @SydesJokes and select 'Tweets & Replies'.
Or check the link twitter.com/SydesJokes/wit…
Or check the link twitter.com/SydesJokes/wit…
Retweet the main tweet for 50 Engagement Points.
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
sydesjokes.blogspot.com/2021/09/histor…
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
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This is a #FollowFriday tweet for the following hashtags for 18th November 2021:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain #JohnsonOut #TorySleaze #GTTO
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain #JohnsonOut #TorySleaze #GTTO
Retweet the main tweet for 50 Engagement Points.
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
sydesjokes.blogspot.com/2021/09/histor…
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
sydesjokes.blogspot.com/2021/09/histor…
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#LongCovid is the grassroots movement who changed how covid is understood and drew new attention to the huge clinical burden of viral-onset diseases and their complex pathophysiology
Patients're expert on their condition. They should be treated as such
Grateful for this community
Patients're expert on their condition. They should be treated as such
Grateful for this community
Those with #LongCovid and allies in the (post) infection disease community #MEcfs have produced top notch advocacy, patient led research and science communication. We have contributed, and are contributing, to change the medical landscape around covid and other chronic diseases
It is of key importance that policy makers, some in the medical establishment, and in public health, fully understand the huge disease burden of SARS-CoV-2 infection and other viral-onset diseases
It is especially imperative in the case of a disease as severe as covid
#LongCovid
It is especially imperative in the case of a disease as severe as covid
#LongCovid
For those who asked, this study is accepting those hot local to Miami whether you are still in Fl or are willing to travel to participate
(see parts 2-5 for more info)
Mention my name when reaching out (Karyn).
1/5
#FBLC #LONGCOVID #LONGHAULER #PASC #RESEARCH #STUDY #UofMiami
(see parts 2-5 for more info)
Mention my name when reaching out (Karyn).
1/5
#FBLC #LONGCOVID #LONGHAULER #PASC #RESEARCH #STUDY #UofMiami
For those new to this. This is my myocarditis doc at university of Miami doing this study.
-Covid attacks our endothelium, which we have in every aspect of our body. We complain of blood pooling, bad veins, easy brushing, poor circulation, hr and bp issues.
2/5
-Covid attacks our endothelium, which we have in every aspect of our body. We complain of blood pooling, bad veins, easy brushing, poor circulation, hr and bp issues.
2/5
A lot of this is likely from endothelial dysfunction which I believe *may* be the trigger of pots or dysautonomia in many of us.
- I only grew 1 of 6 tubes back showing endothelial dysfunction.
3/5
- I only grew 1 of 6 tubes back showing endothelial dysfunction.
3/5
This is a #FollowFriday tweet for the following hashtags for 4th November 2021:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #StrongerTogether #TakeBackBritain
Retweet the main tweet for 50 Engagement Points.
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
sydesjokes.blogspot.com/2021/09/histor…
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
sydesjokes.blogspot.com/2021/09/histor…
Thanks to my last 12 Donors:
@deelomas
@EuropeanPowell+
@HopeFBPE+
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@VelvickChris+
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Check my tweet for how to donate bit.ly/3w4IaPh
@deelomas
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@HopeFBPE+
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@mccall1902+
@VelvickChris+
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Check my tweet for how to donate bit.ly/3w4IaPh
This is a #FollowFriday tweet for the following hashtags:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack
Nominate your Tweets of the Week
Nominate your best anti-Brexit/anti-Tory tweet of the week. People can nominate their own tweets. Tweets will be ranked according to how many times they were nominated.
forms.gle/ULQGkRWa1eygrh…
#TweetsOfTheWeek
Nominate your best anti-Brexit/anti-Tory tweet of the week. People can nominate their own tweets. Tweets will be ranked according to how many times they were nominated.
forms.gle/ULQGkRWa1eygrh…
#TweetsOfTheWeek
Retweet the main tweet for 50 Engagement Points.
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
hive.blog/twitter/@sydes…
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
hive.blog/twitter/@sydes…
This is a #FollowFriday tweet for the following hashtags:
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #Hive $hive
hive.blog/twitter/@sydes…
#FBPE
#FBPEGolbal
#FBFinland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #FollowBack #Hive $hive
hive.blog/twitter/@sydes…
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'For those in peril on the sea'
I grew up in London so this is close to my heart.
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This is a #FollowFriday tweet for the following hashtags:
#FBPE
#FBPEGolbal
#FBFindland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #Hive @Hive
hive.blog/twitter/@sydes…
#FBPE
#FBPEGolbal
#FBFindland
#FBFIN
#FBIW
#FBSI
#FBLC
#FF #FollowBackFriday #FBFriday #FBF #Hive @Hive
hive.blog/twitter/@sydes…
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Retweet the main tweet for 50 Engagement Points.
Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
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Like the main tweet for 25 Engagement Points.
Engagement Points are how I determine the ranking on my #Top1000 list. I give points for Likes, Replies & Retweets of my tweets.
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