Discover and read the best of Twitter Threads about #gpdatagrab
Most recents (4)
🚨🚨🚨NEW: we've suing the gov't over the half-a-billion pound NHS Federated Data Platform with our amazing partners at @JustTreatment, @TheDA_UK & @NPCUK.
It looks like the #GPDataGrab on steroids + gov’t is refusing to reveal the details. Read more: thisismoney.co.uk/money/markets/…
It looks like the #GPDataGrab on steroids + gov’t is refusing to reveal the details. Read more: thisismoney.co.uk/money/markets/…
If you’re worried about the Federated Data Platform too, use our tool to quickly write to your MP and ask them to kick the tyres of this deal – urgently: foxglove.org.uk/campaigns/dont…
We've asked gov't for answers for months but we *still* don’t know:
What data will be collected,
How it will be used,
Who will have access,
And most important: how will it be protected?
@PalantirTech are favourites for the £480m deal – so this is urgent.
What data will be collected,
How it will be used,
Who will have access,
And most important: how will it be protected?
@PalantirTech are favourites for the £480m deal – so this is urgent.
Those of you who know my work on #privacy, #identity, and #HumanRights in #data these past 18 years - mostly through @NO2ID & @medConfidential, and in other areas besides - won't be surprised at my involvement in @WEDF_foundation.
This [Thread] is an invitation to join us...
This [Thread] is an invitation to join us...
...and help define what I believe is one of the most crucial discussions of our time; on the #personal, #civil, #political and #planetary consequences of the #world(s) we are building - and the #values we want to underpin them. 
I spoke at last year's @WEDF_forum about '#Engineering for #Ethics', just a couple of months before the #GPDPR #GPdataGrab was announced in May.
My talk was an attempt to reflect on and draw lessons from my years of campaigning and work around #data...
My talk was an attempt to reflect on and draw lessons from my years of campaigning and work around #data...
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts...
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
The Government has instructed your GP to hand over your lifelong medical history – your GP doesn’t have a choice, but YOU DO... until 23rd June.
If you don’t want your family’s #GPdata used & sold to Hancock’s cronies, send/give this letter to your GP:
medconfidential.org/wp-content/upl…
If you don’t want your family’s #GPdata used & sold to Hancock’s cronies, send/give this letter to your GP:
medconfidential.org/wp-content/upl…
While @NHSDigital’s #OptingOut page* says a #Type1 “can only be recorded by your GPpractice” & doesn’t even link to the form, it’s worth noting #GeneralPractice is currently the busiest it’s ever been. Why is @DHSCgovuk putting even more work onto GPs?
* digital.nhs.uk/about-nhs-digi…
* digital.nhs.uk/about-nhs-digi…
