Discover and read the best of Twitter Threads about #gradedexercisetherapy
Most recents (8)
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"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)
2 of 4 authors are MDs
Free
mdpi.com/2227-9032/10/1âŠ
I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
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"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)
2 of 4 authors are MDs
Free
mdpi.com/2227-9032/10/1âŠ
I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
1/
Guten Morgen, liebe #Follower & solche, die es werden wollen! đ
Immer wieder passiert es, dass #LongCovidKids #MECFSKids bzw. Eltern in Schulen o. Ămtern Probleme bekommen.
Die Kinder werden trotz deutlicher Symptomatik in den Unterricht gedrÀngt.
Ein 𧔠von #BildungAberSicher
Immer wieder passiert es, dass #LongCovidKids #MECFSKids bzw. Eltern in Schulen o. Ămtern Probleme bekommen.
Die Kinder werden trotz deutlicher Symptomatik in den Unterricht gedrÀngt.
Ein 𧔠von #BildungAberSicher
FĂŒr die #MECFSKids #LongCovidKids ist dies höchst problematisch, da sie dann der einzigen bisher bekannten wirksamen #Therapie bzw. #Verhaltensweise, die in diesem Fall sicher angeraten werden kann, nicht nachkommen können:
dem #Pacing!
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mecfs.de/was-ist-me-cfsâŠ
dem #Pacing!
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mecfs.de/was-ist-me-cfsâŠ
Unser neuer #Flyer soll hier erste Hilfe geben.
Er kann, darf und soll an #LehrkrĂ€fte, #Erzieher_innen, #Schulpsycholog_innen, #Schulleitungen & Ămter weitergegeben werden.
Er bietet eine erste Information und weiterfĂŒhrende Links.
3/
Er kann, darf und soll an #LehrkrĂ€fte, #Erzieher_innen, #Schulpsycholog_innen, #Schulleitungen & Ămter weitergegeben werden.
Er bietet eine erste Information und weiterfĂŒhrende Links.
3/
[Thread]
It's 3rd anniversary of our paper
"Monitoring treatment harm in #MyalgicEncephalomyelitis / #CFS: A freedom-of-information study of NHS specialist centres in England"
journals.sagepub.com/doi/abs/10.117âŠ
Hopefully it will influence, among other things, #LongCovid clinics
#MEcfs
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It's 3rd anniversary of our paper
"Monitoring treatment harm in #MyalgicEncephalomyelitis / #CFS: A freedom-of-information study of NHS specialist centres in England"
journals.sagepub.com/doi/abs/10.117âŠ
Hopefully it will influence, among other things, #LongCovid clinics
#MEcfs
1/n
2/
Summary article for laypeople:
"Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds" (June 2019)
virology.ws/2019/07/16/triâŠ
#GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Summary article for laypeople:
"Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds" (June 2019)
virology.ws/2019/07/16/triâŠ
#GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
3/
I searched but couldn't find a legal copy online of "Monitoring treatment harm in #MyalgicE/#ChronicFatigueSyndrome ..." that others can access so I uploaded here researchgate.net/publication/33⊠what we submitted to the journal which is something we own the copyright on.
#MEcfs #CFS
I searched but couldn't find a legal copy online of "Monitoring treatment harm in #MyalgicE/#ChronicFatigueSyndrome ..." that others can access so I uploaded here researchgate.net/publication/33⊠what we submitted to the journal which is something we own the copyright on.
#MEcfs #CFS
[Thread]
"#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome: Essentials of Diagnosis & Management" (from US ME/#CFS Clinician Coalition)
mayoclinicproceedings.org/article/S0025-âŠ
"21 clinicians specializing in ME/CFS convened to discuss best clinical practices for adults affected by #MECFS"
1/
"#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome: Essentials of Diagnosis & Management" (from US ME/#CFS Clinician Coalition)
mayoclinicproceedings.org/article/S0025-âŠ
"21 clinicians specializing in ME/CFS convened to discuss best clinical practices for adults affected by #MECFS"
1/
2/
"the United States and other governments as well as major health care organizations have recently withdrawn graded exercise and cognitive-behavioral therapy as the treatment of choice for patients with ME/#CFS
#ChronicFatigueSyndrome #MEcfs #MyalgicE #PwME #MyE #MEeps
"the United States and other governments as well as major health care organizations have recently withdrawn graded exercise and cognitive-behavioral therapy as the treatment of choice for patients with ME/#CFS
#ChronicFatigueSyndrome #MEcfs #MyalgicE #PwME #MyE #MEeps
3/
"There are many steps that clinicians can take to improve the health, function, & quality of life of those with ME/#CFS, including those in whom #MECFS develops after COVID-19"
#PostViralFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #Covidlonghaulers #PostCovidSyndrome
"There are many steps that clinicians can take to improve the health, function, & quality of life of those with ME/#CFS, including those in whom #MECFS develops after COVID-19"
#PostViralFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #Covidlonghaulers #PostCovidSyndrome
@postersandme @keithgeraghty Energy management is Activity Management rebranded as Pacing #MEinterventions
Note analeptic anaerobic energy management by @4Workwell is not mentioned by name or pacing .
Nor is #2dayCPET mentioned in identifying PEM in making diagnosis and contraindicated aerobic exertion
Note analeptic anaerobic energy management by @4Workwell is not mentioned by name or pacing .
Nor is #2dayCPET mentioned in identifying PEM in making diagnosis and contraindicated aerobic exertion
@postersandme @keithgeraghty @4Workwell #MECFS NICE guide update rebranded Activity Management ( recommended in the previous guideline due to similarities with GET and includes all activity types & had no definition or evidence bace ) , as âEnergy Managementâ .Claiming it achieves stabilisation & Activity tolerance !
@postersandme @keithgeraghty @4Workwell They been providing âactivity managementâ already at specialist behavioural services
Maybe they created a stink pausing the publication so that patients demand itâs published,to show that patients support the guideline ?
There should be a round table as this is just rebranding
Maybe they created a stink pausing the publication so that patients demand itâs published,to show that patients support the guideline ?
There should be a round table as this is just rebranding
1. It should not be that people end up traumatised by visiting Drs; that they put off going because of how theyâve been disbelieved, dismissed,treated as hysterical, or even yelled at. I know many of you with #MyalgicEncephalomyelitis can relate to what Iâm saying.
#MedTwitter
#MedTwitter
2. Iâve grown to dread every visit to Drs & specialists. Not one of them has ever been truly interested in acknowledging that I have #ME, or taken it into account when âtreatingâ me. I use that word loosely, cos unless they acknowledge it,how can they fully treat me?
#MedTwitter
#MedTwitter
3. Iâve had #MyalgicE for 25 yrs, so thatâs a sad indictment on the medical profession & governments whoâve ignored & maligned us for decades. Research funding has been abysmal, worldwide. Because itâs a common thread amongst people with #ME, I know itâs widespread.
#MedTwitter
#MedTwitter
[Thread]
"No More Mr NICE GuyâŠ" by Brian Hughes, a professor of psychology
thesciencebit.net/2020/11/21/no-âŠ
An incisive blog that covers the NICE ME/#CFS guidelines, issues regarding trials of nonpharmacological interventions in general, appeals to authority, etc.
#MEcfs #MyalgicE
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"No More Mr NICE GuyâŠ" by Brian Hughes, a professor of psychology
thesciencebit.net/2020/11/21/no-âŠ
An incisive blog that covers the NICE ME/#CFS guidelines, issues regarding trials of nonpharmacological interventions in general, appeals to authority, etc.
#MEcfs #MyalgicE
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2/n
"The new [NICE] guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of medicine â and, for good measure, to cast clouds over significant swathes of psychology too"
"The new [NICE] guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of medicine â and, for good measure, to cast clouds over significant swathes of psychology too"
3/n
"Here is an extract from expert testimony provided by Jonathan Edwards, professor emeritus of clinical medicine at University College London" [on the #PACETrial authors trying to justify their use of post-hoc criteria rather than their original criteria]
#MEcfs #CFS #CBT
"Here is an extract from expert testimony provided by Jonathan Edwards, professor emeritus of clinical medicine at University College London" [on the #PACETrial authors trying to justify their use of post-hoc criteria rather than their original criteria]
#MEcfs #CFS #CBT
Press Release from NICE about its new draft #MECFS guidelines that are out for consultation
meresearch.org.uk/nice-guidelineâŠ
âThe draft guideline also highlights the importance of ensuring that people remain in their âenergy envelopeâ when undertaking activity of any kindâ
#CFS
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meresearch.org.uk/nice-guidelineâŠ
âThe draft guideline also highlights the importance of ensuring that people remain in their âenergy envelopeâ when undertaking activity of any kindâ
#CFS
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Draft NICE guidance ârecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no âone size fits allâ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersâ
Draft NICE guidance ârecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no âone size fits allâ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersâ
