Discover and read the best of Twitter Threads about #hbot
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A few people have asked for a single thread on my journey through #HBOT (Hyper baric oxygen therapy) for #LongCovid So here goes. Before I started I was in bad shape. Mostly bed bound. Profound tinnitus, PEM - 300 m was the absolute limit. A trip to the shops was tough going.
I had coat hanger pain all the time. Neck and shoulders. Tremor in my hands, legs and jaw. Profound brainfog I couldn't read, had memory problems and couldn't complete any complex tasks. My mood was incredibly low. Hopelessness , despair and anger. I had sleeplessness
And nightmares every night. I woke feeling exhausted never felt refreshed or comfortable in the bed. Crushing fatigue everyday I never felt energised and had basically become a recluse. What energy I had I used to sift through twitter and medical journals to find anything that
A funny thing is happening as I regain parts of my life as a result of receiving #HBOT after a 14 month battle with #LongCovid. While I'm incredibly grateful to be one of the lucky ones who found a treatment they respond to I'm also trying to come to terms with the possibility
That some of the damage maybe permanent. For example the other day I was taking the boat out after a spin up the river, there is a winch on the stern that keeps the boat on the trailer. I couldn't figure out how it works. I've been using those winches for years. Literally like
Second nature to me. It operates in such a way as you have to have several things lined up so it will tighten properly. Not matter what I did I could not put the pieces together. #Brainfog means I am unable to do tasks which require multiple areas of focus.
I'm somewhere mid twenties in my #HBOT sessions. There was a four day gap between sessions this week. By last night I was starting to feel pretty wiped. The 3 hour drive is tough on my best days. After my session today I'm totally wiped. Grumpy and sleepy all day. #LongCovid
What usually happens is by tmrw today's session will have taken effect and ill be feeling much better. Lots of people have asked questions about not feeling good or not feeling any relief after sessions. It takes time. I was on session 22 (ill have to look it up-brain fog) before
I felt significantly better. I met a girl today who I met last week and she was worried cause she was wiped after sessions. This week on session 9 she is still wiped but starting to feel rested when she wakes in the morning. Progress.
Goedenavond,
Toch een keer een berichtje om mijn ervaring met o.a. #HBOT te delen.
Ik ben Charlotte, 36 jaar en woon samen met mijn man en hond in Eindhoven. Sinds februari 2022 heb ik #LongCovid overgehouden aan een milde covid infectie.
Toch een keer een berichtje om mijn ervaring met o.a. #HBOT te delen.
Ik ben Charlotte, 36 jaar en woon samen met mijn man en hond in Eindhoven. Sinds februari 2022 heb ik #LongCovid overgehouden aan een milde covid infectie.
Sindsdien van alles geprobeerd, hier een kort chronologisch overzicht:
1. Huisarts: ‘we weten nog niks’, ‘even een jaartje uitzitten’, ‘iedereen is er met een jaar wel vanaf’, ‘ja, je mag wel herstelzorg, maar ben je ook niet gewoon toe aan vakantie?’
1. Huisarts: ‘we weten nog niks’, ‘even een jaartje uitzitten’, ‘iedereen is er met een jaar wel vanaf’, ‘ja, je mag wel herstelzorg, maar ben je ook niet gewoon toe aan vakantie?’
2. Bloedonderzoek
3. fysiotherapie (10 min opwarmen op een fiets (ja echt?!) en dan 3 krachtoefeningen in sets van 15 herhalingen. Ik wist toen nog niet wat #PEM was. Wel iedere keer 2 dagen ziek. ‘Maar, je moet wel wat opbouwen he!’
3. fysiotherapie (10 min opwarmen op een fiets (ja echt?!) en dan 3 krachtoefeningen in sets van 15 herhalingen. Ik wist toen nog niet wat #PEM was. Wel iedere keer 2 dagen ziek. ‘Maar, je moet wel wat opbouwen he!’
I just want your brain to work well so you can feel amazing. I don't care if you use a ketogenic diet. And for those of you with long-Covid, you may benefit from HBOT treatment. 🧵(1/8)
"Hyperbaric oxygen therapy can improve cognitive function, psychiatric symptoms, pain, and fatigue in patients who have post–COVID-19 conditions. (2/8)
The beneficial effect of the therapy can be attributed to increased brain perfusion and neuroplasticity in regions associated with cognitive and emotional roles." (3/8)
1/ I'm approaching my 2 year anniversary of #LongCovid . I thought I would share my journey to recovery. This is not medical advice, just my story. If it helps one person it's worth it. I learned more from Twitter than anywhere else on this journey. #microclots #teamclots #pots
2/ I got COVID November 2020. Night 1 I had the most excruciating headache of my life. It felt as if someone was drilling into my forehead. The headache dissipated after 2 days only to return day 13. Initially I had some minor brain fog, like putting Ice Cream in the fridge etc
3/ I never lost my sense of taste or smell. I had a minor fever/body aches for 24 hours. Day 4, I started having heart rate issues. I would be resting on the couch and get up to walk to the bathroom and my heart rate would jump to 130.
