Discover and read the best of Twitter Threads about #identified

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This headline 👇 will be no surprise to anyone who's been following @NHSEngland's plans (and actions) for a while.

But @JonUngoedThomas's article reveals some crucial details about what's intended for your #NHS #HealthRecords that are worth unpacking...

theguardian.com/society/2022/n… Controversial £360m NHS Eng...
First, and possibly most significantly, is @NHSEngland officials' confirmation that its '#FederatedDataPlatform' will incorporate patients across England's #SharedCareRecords: Health officials confirmed ...
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...

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*#IntegratedCareSystem explainer here:

kingsfund.org.uk/publications/i… Map 1: The 42 integrated ca...
Read 21 tweets
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)

It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].

Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... Terms of reference for the review  1. How do we facilitate a
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...

"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:

gov.uk/government/new… The far-reaching independent review into potential ethnic bi
Read 159 tweets
Context for this [Thread]:
wfp.org/news/gsma-and-…

And overview of @WFP #SCOPE: …ons4sdgs.globalinnovationexchange.org/innovations/sc…

Noting it is also a #biometric #IDcard:
google.com/url?q=https://…

53 out of 80 million 'potential beneficiaries' is dwarfed by the 1.253 *billion* on #Aadhaar; ~140 million...
...adults on #CNIC in Pakistan; the 110 million whose #biometrics have already been taken for the as-yet-undelivered Brazilian #IDscheme; & is (roughly) equivalent to the numbers now registered on Nigeria's #centralisedID system.

@WorldBank's dataset:
datacatalog.worldbank.org/dataset/identi… ...
...is a bit dated, and focused on who's NOT registered - it's everyone's "right to be officially #identified', don'tcha know - but I do the maths periodically to keep an eye on the global picture as it #metastasises.
Read 4 tweets
So, @MattHancock, rather than dribbling out info months after the fact will you please get @DHSCgovuk & @NHSEngland to publish a list of ALL #COVID-related projects, related contracts & data access RIGHT NOW.
Also, it doesn't bode well that you're misrepresenting genuine research!

@OpenSafely doesn't work on the #DataStore, it sits on #TPP's servers - which you'd know if you had the first clue or bothered to read its homepage: opensafely.org Image
And BTW, no-one's buying your transparent shilling for @faculty_ai:



Its "new cutting-edge predictive technology" was no help in the first wave - 'cos no overwhelm - but you gotta announce SOMETHING now, to justify paying Marc Warner & co. even more...
Read 4 tweets

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