Discover and read the best of Twitter Threads about #knappisahero
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This morning we have a talk from Emma Nicklin who is undertaking a PhD project in @LeedsMedHealth looking at the supportive care needs of TYA brain tumour survivors and their care givers - the famous @Leeds_Childrens PaedOnc Breakfast Meeting
The prior work of the entire world has been summarised in a #SystematicReview onlinelibrary.wiley.com/doi/abs/10.100…
Reduced functionality scores were reported in social, physical, spiritual, psychological (emotional/behavioural) and cognitive domains. These were frequently interrelated.
This lunchtime is the @HealthSciYork talk by Dr Peter Knapp - lead of the @TRECAStudy - all about how we can understand why people do or don’t take part in research #KnappIsAHero
He’s done 20 years of research in this area, making patient information better and more meaningful #KnappIsAHero
We know that people getting into trials is challenging and we may have a whole bunch of assumptions about why and what is happening ... and these assumptions about information needs and acceptability my even extend to NHS REC @HRA_Latest committees
