Discover and read the best of Twitter Threads about #lcme

Most recents (2)

Cematics for vagus nerve stimulatin&Nitrous Oxide production- myofascial release, dry needling & trigger point therapy #STO clinical sports therapy for pain and improved gut motility/ paralysis. Reiki, meditation.. has kept me going with esophageal+widespread paralysis since 2015
To be fair I have been putting in 2 hour to 18 hours of manual neuromuscular activation on soft tissue release ever since but my hands are generating so I have trained A multidisciplinary Team in what I do improve my gut motility / innervated small intestine within a month 🙏🏽🤍🕊
Esophageal paralysis still a huge problem-overall paralysis I still have to manage daily until my multiple neurosurgeries-if I even qualify having Endstage nerve damage due to IgG paraproteinemia/an immunoglobulin pathology highlighted as a biomarker for #EBV induced #ME in April
Read 22 tweets
1/7“The cardinal symptom of ME/CFS – PEM or post exertional exacerbation of symptoms.
……the fact that by definition, patients with ME/CFS are made more ill by aerobic exercise.
This has been unequivocally and repeatedly demonstrated by several research groups and confirmed by"
2/7"major govt. bodies in the US: the National Institutes of Health, the Center for Disease Control and the National Academy of Medicine.” #MECFS #LCME #ExertionIntolerant #EnergyLimitingConditions #PostExertionalMalaise #StopRestPace

dialogues-mecfs.co.uk/films/graded-e…
3/7 #pwME "need a level of discipline at least as high as the average Olympic athlete to control and restrict all their activities so completely for years." #MECFSWarriors
#StopRestPace
#Baseline #FineLine
#ProlongedOverExertionKills
#SelfCompassionIsKey

hfme.org/adrenalinesurg…
Read 8 tweets

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