Discover and read the best of Twitter Threads about #longcovidwork

Most recents (3)

PHASE 1 LAUNCH! New study reveals yawning gap in medical care for energy-impaired

#pwME #NEISvoid #FBLC #LongCovidWork #LongCovidCosts #TreatLongCovid #CountLongCovid #miilionsmissing #HealthEquity #patientled #medtwitter #wellless

A THREAD > Image shows 'energy' used for patient activities on a graph
Long-Covid visual report quantifies money, time, work and energy spent on the battle to get medical care, and introduces new language of the β€œwell-less” to improve patient awareness and support.
@long_covid @longcovidwork @actionforme @chronicinclude #EDS #PoTS #postviral Image shows a new healthcare spectrum from Well[ness] throug
I tracked and analysed my own health interactions from 2020 across nine different self-data sources, including @BupaUK @Bupa , @LloydsBank , @timspector (Zoe Covid Symptom Tracking App(, email, SMS, mobile and calendar data #Datavisualization #selfanalytics #dataviz
Read 25 tweets
Working or job loss with #LongCovid

Many complex experiences, some very good points in 🧡 πŸ”½

But also clear evidence of the potentially massive impact of SARS-CoV-2 infection on the workforce. Many will be unable to work again or will need long-term sick leave

I add to this @patientled @itsbodypolitic research survey in a tweet by @ahandvanish

The majority of #LongCovid patients in their survey were unable to work ~7 months in. We've increasing evidence many don't recover beyond

Paper now in @EClinicalMed

Unable to work at all or maintain a full schedule to be more precise: 68%
Read 4 tweets
An excellent podcast on #LongCovid with @ClareRayner6 talking to @m_maclennan @covidaidcharity
Key points
πŸ‘‰ #longcovidwork is a huge crisis in the making
πŸ‘‰ many people have been out of work for over 1 year
πŸ‘‰ many haven't received any medical assessment at all
πŸ‘‰ some health issues in #LongCovid can be managed with medication etc.
πŸ‘‰ yet, many patients haven't received the necessary treatment
πŸ‘‰ proper adjustment, like flexible work, can help people go back to their job
πŸ‘‰ no support will lead people being pushed out of employment
πŸ‘‰ there is already a shortage of employees in some sectors: how do we manage with the huge numbers of people with #LongCovid unable to work?
πŸ‘‰ compensation will be needed for those who cannot go back to employment
πŸ‘‰ we have an opportunity to push for better work conditions
Read 4 tweets

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