Discover and read the best of Twitter Threads about #longebv
Most recents (2)
1) An interesting study, but an important limitation is the lack of data for post-exertional malaise and brain fog. The authors use the fact that these symptoms were not yet seen as related to Covid-19 at the beginning of the pandemic, and that this only became apparent at
2) a later stage, as an excuse that these symptoms were not included.
I thought this was an a bit of an odd statement. Both Tim Olde Hartman d Judith Rosmalen were members of the Dutch Health Council for "#MECFS" for 2 years, which was published in 2018. Post-exertional malaise
I thought this was an a bit of an odd statement. Both Tim Olde Hartman d Judith Rosmalen were members of the Dutch Health Council for "#MECFS" for 2 years, which was published in 2018. Post-exertional malaise
3) was added as a mandatory symptom for the diagnosis. Cognitive dysfunction as optional. For the ME Ramsay criteria, PEM has been a mandatory symptom since the '50s.
In addition, we know that in previous coronavirus outbreaks, people met the "CFS" criteria or had symptoms
In addition, we know that in previous coronavirus outbreaks, people met the "CFS" criteria or had symptoms
1/ I politely and urgently request for the name of Dr Amy Proal @microbeminded2 to also be added. If she is willing, it is essential Dr Proal also be given a seat at the #ME round table. @LucyChappell2 @sajidjavid
2/ Dr Proal is a strong ally of patients with #ME. Having experienced the illness herself, she has a unique understanding of the condition which she is using to inform hypotheses.
3/ Alongside others, she recently published pioneering work which showed #microclots in the blood of those with #ME.
