Discover and read the best of Twitter Threads about #longebv

Most recents (2)

1) An interesting study, but an important limitation is the lack of data for post-exertional malaise and brain fog. The authors use the fact that these symptoms were not yet seen as related to Covid-19 at the beginning of the pandemic, and that this only became apparent at
2) a later stage, as an excuse that these symptoms were not included.

I thought this was an a bit of an odd statement. Both Tim Olde Hartman d Judith Rosmalen were members of the Dutch Health Council for "#MECFS" for 2 years, which was published in 2018. Post-exertional malaise
3) was added as a mandatory symptom for the diagnosis. Cognitive dysfunction as optional. For the ME Ramsay criteria, PEM has been a mandatory symptom since the '50s.

In addition, we know that in previous coronavirus outbreaks, people met the "CFS" criteria or had symptoms
Read 10 tweets
1/ I politely and urgently request for the name of Dr Amy Proal @microbeminded2 to also be added. If she is willing, it is essential Dr Proal also be given a seat at the #ME round table. @LucyChappell2 @sajidjavid
2/ Dr Proal is a strong ally of patients with #ME. Having experienced the illness herself, she has a unique understanding of the condition which she is using to inform hypotheses.
3/ Alongside others, she recently published pioneering work which showed #microclots in the blood of those with #ME.
Read 7 tweets

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