Discover and read the best of Twitter Threads about #lupuschat

Most recents (6)

Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
A6. Twitter, despite some people's belief that #ChronicPain can be cured by ridiculous things, is a wonderful place to find and participate in community. #LupusChat
A6. Some favorite hashtags and Twitter chats, then I'll leave a link to the last time I updated my list.

Chats

#SpoonieChat
#MedTraumaChat
#LupusChat of course
#CripLit
#CripTheVote
Read 3 tweets
A2. Lack of accessibility creates the concept of disability as a lesser than status in a social construct, rather than a neutral medical fact. #LupusChat
A2. The world would not see us as abnormal if it was normalized so that everyone could access everything. #LupusChat
A2. In constructing the world for the abled and able-bodied, it's deconstructing the world for disabled people and people with chronic illness.

#LupusChat
Read 5 tweets
A3. We have to have each other's backs. A sense of community is wonderful, regardless of how it is found.

Intersectional awareness is key as well. If you're out supportive of people like you, you're not supportive. #LupusChat
Support also comes in many forms. It's listening when you're in a position of privilege and not being centered. It's showing remorse and making appropriate amends if you misstep. #LupusChat
It's also tricky, balancing the recognition that everyone is not at the same stage of "wokeness" with not being responsible for other's wanton ignorance.
#LupusChat
Read 4 tweets
A3. From home I observed #ACR18 featuring patient interviews like the one with @DawnMGibson.

It gave me so much hope & vidation about #painsomnia. #CreakyChats
A3. Iearned about patient posters & through community representatives who attended, that researchers and doctors were observing and listening. #CreakyChats
A3. That meant so much to me. I'm still thinking about it and browsing and observing material from the #LupusChat attendees, @CreakyJoints and @DawnMGibson.

What a well timed moment to be be newly diagnosed with Arthritis & Fibro.

#CreakyChats
Read 3 tweets
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets

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