Discover and read the best of Twitter Threads about #makewelfarefair

Most recents (3)

Thank you Vicky for sharing your experience of #PIP with us in this thread 👇

"I was born with nocturnal epilepsy and have tried many medications but none have been able to fully control it and my epilepsy is too widespread to have surgery. I had a VNS fitted in March.
Sometimes I now have tonic seizures or short clonic seizures instead of tonic-clonic and partial seizures though I do still have some tonic clonic and partial seizures. I also have problems using my right arm following a suspected stroke when I was a baby.
All of this impacts my life a lot - it affects my memory and I struggle with basic things such as cutting up bits of food. I know some of this is linked to my stroke but know my epilepsy is also a factor. When I have a seizure it's my right arm which shakes the most and thumps
Read 15 tweets
🔴Applying for PIP is an ordeal for many people with epilepsy. Our survey clearly exposes the flaws in the assessment process, which have not improved in eight years.
🔴There is a woeful lack of training and assessors are quick to dismiss the severity of the condition. They are not looking at medical evidence or considering how unpredictable epilepsy can be.
🔴Not only that, the snap judgements made during interview are harmful and concerning. How can anyone hope for a fair assessment when they are penalised for walking across a room, or their seizures aren’t deemed ‘serious’ enough?
Read 5 tweets
68% of people with epilepsy have been left ‘unsatisfied’ or ‘very unsatisfied’ with their PIP assessment, according to our latest survey.

The system is chronically flawed and failing people with epilepsy. A drastic overhaul is needed.

epilepsy.org.uk/welfare-campai…

#MakeWelfareFair
In the survey of 700 people who have claimed PIP 82% stated their assessor did not understand epilepsy, and that the PIP claim form and assessment questions do not accurately capture the difficulties of living with a fluctuating and invisible condition.

#MakeWelfareFair
78% of people said they did not believe their medical evidence was taken into account.

“I was told that I have no cognitive or memory problems when the medication I am on cause memory issues and delayed processing and I have had severe seizures for years.”

#MakeWelfareFair
Read 7 tweets

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