Discover and read the best of Twitter Threads about #mastocytosis

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Je sais pas si ça va beaucoup servir mais j'ai tellement galéré pour trouver des infos que je me dis qu'il doit bien y avoir d'autres gens dans le même cas que moi.
Donc c'est parti pour un thread SAMA/Mastocytose/MCAS/MCAD
#SAMA #mastocytosis #MCAS #MCAD #chronicdisease 1/
Déjà à la base c'est quoi SAMA/Mastocytose/MCAS/MCAD ?
SAMA = Syndrome d'activation mastocytaire. MCAS et MCAD sont les versions Anglaises sous lesquelles on trouve le plus d'infos et Mastocytose c'est le nom de la version évoluée dont j'expliquerais brièvement la différence. 2/
Mais pour les besoins du thread et être plus concise, je parlerais de SAMA tout du long. 3/
Read 50 tweets
I have a ton of brain fog today, so bear with me, but I saw a lot of convos happening about #MCAS last night and I wanted to chime in with some info I've learned in the last decade since my #mastocytosis diagnosis.
For those unfamiliar, everyone's bodies have #MastCells. They're part of your immune system and they're responsible for a few things, but primarily they store ~200+ chemicals (called mediators) and release them when fighting off infections, allergens, etc.
These mediators do lots of different things, and some of them are responsible for telling other cells in your body what to do. When Mast cells release mediators it can set off big chain reactions that can impact most, if not all, the systems in your body.
Read 18 tweets

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