Discover and read the best of Twitter Threads about #meawarenessweek

Most recents (9)

Excited to join in! #MECFSConf Image
Excellent talks, discussions and insights!
#WorldMEDay #MEAwarenessWeek ImageImageImageImage
Read 4 tweets
Slide 5 of our "Seven Slides for Physios": Physiotherapy Assessment of ME

Links and resources 👇

#MEAwarenessWeek #Physio #cpdicord
@thecspstudents @thecsp
Further reading on considerations for visiting someone with severe ME

mdpi.com/2227-9032/8/3/…
DePaul Symptom Questionnaire

leonardjason.com/cfsme_measures…
Read 8 tweets
My desperate cry for help. Twitter, please do your thing🤍

Dear @elonmusk (1/6) Image
Dear @elonmusk (2/6) Image
Dear @elonmusk (3/6) Image
Read 8 tweets
Slide 4: PEM, Fatigue and Diagnostic Issues

This is one area that is key for physios to understand when trying to appraise the evidence

More reading and references 👇

#MEAwarenessWeek #MEAwarenessDay
#Physio #CPD

@thecspstudents @thecsp
Read 4 tweets
Slide 3 of our "Seven Slides for Physios": Post Exertional Malaise

References (there's a lot... and they are just a small selection) and further reading below 👇

#MEAwarenessWeek #CPD #Physio
@thecspstudents @thecsp @WorldPhysio1951
Further reading on PEM:
journals.plos.org/plosone/articl…
A short video describing PEM:
Read 11 tweets
Slide 2 of our "Seven Slides for Physios": How serious is ME?

References and further reading 👇

#MEAwarenessWeek #CPD #physiotalk @thecspstudents @thecsp
Definitions of severity and more detailed information on ME in general can be found here:
onlinelibrary.wiley.com/doi/full/10.11…
Quality of Life reference:
bmjopen.bmj.com/content/bmjope…
Read 8 tweets
Slide 1 of our "Seven Slides for Physios": What is ME, and why do you need to know about it?

Resources and references in this thread 👇

#MEAwarenessweek #CPD #Physio
@thecsp @thecspstudents @WorldPhysio1951 Image
More information and links to resources and a free CPD module for health professionals can all be found on our website:
physiosforme.com/what-is-me
A series of short films by @DialoguesMECFS gives an excellent overview for those who prefer to learn through this medium
dialogues-mecfs.co.uk
Read 4 tweets
🧵1/ Every day this month I'll add a different piece of ME/CFS biomedical research to this tweet so that by the end of #MEAwarenessMonth there'll be a nice long thread of biomedical research papers to keep or share. First up:
…nslational-medicine.biomedcentral.com/articles/10.11… #MECFS #pwME
🧵2/ 'Myalgic encephalomyelitis/chronic fatigue syndrome patients exhibit altered T cell metabolism and cytokine associations', Maureen R. Hanson et al #MEAwarenessMonth #pwME #MECFS #research #MedTwitter #MedEd
ncbi.nlm.nih.gov/pmc/articles/P…
🧵3/ 'Distinct plasma immune signatures in ME/CFS are present early in the course of illness', Mady Hornig et al #MEAwarenessMonth #pwME #MECFS #researchpaper #MedTwitter
advances.sciencemag.org/content/1/1/e1…
Read 28 tweets
#Thread for #MEAW2020

So it's #MEAwarenessDay #MEAwarenessWeek. That's the disease #MyalgicEncephalomyelitis if you don't know.

My Queen @NicolaCJeffery lives with this. We've been treating her for 15 months now at a cost of thousands of pounds, because the #NHS won't help 1/7
2/7 Or rather it will help, but only by telling the 250k+ people who live with #MEcfs in the UK that it's 'all in your head'.

Today was a milestone for Nic. We've now reduced her from 78 tablets & 9 oral solutions a day to 40 and 4.

I'm not sure many people really 'get it'
3/7 Can you imagine taking 78 tablets A DAY? That's what it's taken to try & get her better. But it's come at a huge cost.

It's been the hardest thing me & her have ever done & our lives have been HARD. #Lockdown? Hard? You've no idea. Some people helped with fundraising, so TY
Read 7 tweets

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