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Tina dreaded those 3 days every month
1. 32-year old Tina was happy & cheerful for 27-28 days every month, however, she feared facing the remaining 3-4 days. She hopelessly wished that those days never ever came, but that was not possible.
#medTwitter #neurotwitter
1. 32-year old Tina was happy & cheerful for 27-28 days every month, however, she feared facing the remaining 3-4 days. She hopelessly wished that those days never ever came, but that was not possible.
#medTwitter #neurotwitter
2. Tina used to get severe headaches that occurred only on 3-4 days every month. These days were 1-2 days prior to her menses or during the first two days of menses. She never experienced headache on other days of the month. She had regular periods and had a 2-year old child too.
3. Headaches were severe with a score of 7-8 on visual analog scale (where 10 is the most severe pain, and 0 is absence of pain). Tina had nausea, vomiting and dizziness associated with headache.
Headaches lasted 24-36 hours and they left her completely incapacitated.
Headaches lasted 24-36 hours and they left her completely incapacitated.
Friends, I’m going to do an impromptu #MigraineChat office hour to help anyone who wants to get started with - or learn more about - the MigraineChat Discord group. I’ll be online at 1:30p ET.
If you want to join, please DM me and I will share the Google meet link.
If you want to join, please DM me and I will share the Google meet link.
I’ve done no planning & will do a more formal tutorial later, so this might be a little chaotic. Right now, Discord is the next most organized place to join #MigraineChat besides Twitter.
New people have joined in the past few days, but I worry the “accept rules to enter” thing is throwing people off. Discord can be overwhelming at first, too.
I want to make it as accessible as possible, but understand it isn’t ever going to be for everyone. #MigraineChat
I want to make it as accessible as possible, but understand it isn’t ever going to be for everyone. #MigraineChat
This week’s #MigraineChatAMA invited Qs about the relationship between sleep disorders and #migraine.
Nothing shared is medical advice. Please talk to an HCP before making changes to your migraine treatment. Errors are mine. #MigraineChat /1
Nothing shared is medical advice. Please talk to an HCP before making changes to your migraine treatment. Errors are mine. #MigraineChat /1
What is the relationship between sleep and #migraine? “[T]he exact nature and direction of the association remains enigmatic; migraine may be the result of sleep disruption, but also sleep disruption may trigger migraine,... [cont.]
#MigraineChatAMA /2
#MigraineChatAMA /2
"...or migraine and sleep disruption may be symptoms of an unrelated medical condition, or they might be two intrinsically related phenomena with shared pathophysiological mechanisms.”
…alofheadacheandpain.biomedcentral.com/articles/10.11… #MigraineChatAMA /3
…alofheadacheandpain.biomedcentral.com/articles/10.11… #MigraineChatAMA /3
This week’s #MigraineChatAMA invited Qs abt rebound headache: a topic I wish was more rigorously studied for lots of reasons. The research in this thread is not w/o limitations or issues.
Nothing shared is medical advice. Talk to an HCP before making changes. #MigraineChat /1
Nothing shared is medical advice. Talk to an HCP before making changes. #MigraineChat /1
Medication overuse headache is the ICHD-3 term. Unofficially, it is often referred to as “rebound” headache. Some organizations are trying to get the name updated to medication adaptation headache (to avoid the stigma of blame). For space, I’ll use rebound. /2 #MigraineChatAMA
How common is rebound headache (HA)? A “true prevalence that is unknown, partly resulting from various changes in diagnostic criteria, but estimates are in the range of 0.5 to 2.6%.” /3 #MigraineChatAMA
ncbi.nlm.nih.gov/books/NBK53815…
ncbi.nlm.nih.gov/books/NBK53815…
This week’s #MigraineChatAMA covered acute CGRPs (gepants). There weren’t a lot of questions, so I threw in a few extra resources. There are Qs for the #MigraineChat community at the end.
Nothing here is medical advice. Talk to your doc before making changes. #MigraineChatAMA /1
Nothing here is medical advice. Talk to your doc before making changes. #MigraineChatAMA /1
Do acute gepants work for those w/chronic migraine (CM)?
Clinical trials typically look at ppl w/episodic migraine first: either excluding ppl w/CM or not enrolling enough to obtain reliable results for the CM subgroup. #MigraineChatAMA
/2
Clinical trials typically look at ppl w/episodic migraine first: either excluding ppl w/CM or not enrolling enough to obtain reliable results for the CM subgroup. #MigraineChatAMA
/2
I couldn’t find studies of gepants for acute use in CM. Anecdotally, though, yes! The #MigraineChat community has shared experiences w/Ubrelvy & Nurtec as acute treatments even for those with chronic migraine. #MigraineChatAMA /3
Two weeks ago, I posted the #MigraineChatAMA topic: #CGRP preventives. You had great questions. Some I couldn’t answer satisfactorily, others too big to summarize adequately in a thread (i.e., I’ve give an example study for one CGRP, but other research exists). /1
Quick notes: This is not medical advice, just meant to get you pointed in the direction of things to discuss with your doctor. Also, due to space, terms are defined then abbreviations used. Studies may not use brand names (e.g., erenumab, not Aimovig). #MigraineChatAMA /2
Is it worth ⬆️ Aimovig from 70mg to 140mg if you’ve seen severity ⬇️ but not frequency?
This Q is a little tough to answer because so many of the original studies looked at reduction in monthly migraine days (MMDs) as their main outcome (freq, not severity). #MigraineChatAMA /3
This Q is a little tough to answer because so many of the original studies looked at reduction in monthly migraine days (MMDs) as their main outcome (freq, not severity). #MigraineChatAMA /3
Week 2 #MigraineChatAMA - #migraine types: You had some tough Qs & I don’t have all the answers. Just because I didn’t find them in my search, doesn’t mean they don’t exist. If you have reliable sources of information, please share. Errors are mine. For more info, click links. /1
Types: 2 main types are migraine without aura (MwoA) & migraine with aura (MwA). Under MwA are migraine w/: typical aura*, brainstem aura, hemiplegic & retinal migraine. *Migraine w/typical aura also incls migraine without headache. migraineagain.com/10-types-of-mi…
#MigraineChatAMA /2
#MigraineChatAMA /2
Types, cont: menstrual migraine (MM) is a subtype under either MwoA or MwA. If attacks happen only during menses = pure MM. Migraine attacks during menses and other times = mensturally-related migraine.
MM can be tougher to treat.
healthline.com/health/migrain…
#MigraineChatAMA /3
MM can be tougher to treat.
healthline.com/health/migrain…
#MigraineChatAMA /3
