Discover and read the best of Twitter Threads about #migraines

Most recents (10)

@teaze_r @RedactedMom 1-) hEDS can not be detected w/ a genetic test. My child has an EDS gene in which I am positive that I am the one who passed it down. However they dismissed that gene mutation as a Variation of Unknown Significance, (VUS).
However scientists appear to be way ahead of that...
@teaze_r @RedactedMom 2-) ...geneticist because when I looked it up, having 1 copy of that mutated gene CAN cause problems. The mutation that I am talking about is a mutation in the COL12a1 gene. ncbi.nlm.nih.gov/pmc/articles/P…
@teaze_r @RedactedMom 3-)... My 1st sign of having this mutation was Clinical Carpal Tunnel Syndrome. My 2nd sign was Plantar Facitus, however at the time that I started having those problems I didn't recognize either problem as being a part of something as a whole. The next sign that I can think...
Read 21 tweets
Welcome to #NeudrawlogyMigraineEdition, part 7! 🤕🧠

CRGP = Calcitonin gene-related peptide plays an important role on the pathophysiology of migraine

💊Their antagonists can be used for either migraine prophylaxis or acute treatment of a headache episode

Part 8 tomorrow!
Read 12 tweets
#longcovid. I have had it twice now. Never recovered from first infection. I am no longer able to stand for very long or make meals for my family. I can no longer work as I continuously have #fatigue, #migraines, #nausea, nerve #pain and #brainfog. …“

1/4 Image
„I use to work full time and just started a new job with the IRS after a pause from working as a mail carrier for 12 years. I can no longer do my daily of walks of 3 to 5 miles. Or spend time hiking or kayaking. …“

2/4
„I enjoyed baking breads and pies and helping my older sister and aging parents out. I can no longer do that. I am a shell of myself. I have spent thousands of dollars and countless appts trying to figure out what was wrong with me in the beginning. …“

3/4
Read 4 tweets
Taken me several days to answer this, because migraines have long been a gap in my knowledge

Can't feel too bad though, because the science of #migraines is WAY more complex and uncertain than most would have thought

Here's what's known

Strap in, this will get complicated

/1
What is the root cause of migraines? Currently 'TBC', unfortunately.

But evidence suggests it involves neurological, vascular, hormonal and genetic factors are working in concert

Applies to pretty much anything in the brain, it never makes it easy

/2
But if there IS one specific 'root cause' of migraines, most fingers point to Cortical Spreading Depression, CSD

What's that?

It's when a neuron, brain cell, experiences a sudden burst of activity (depolarisation), followed by a period of inactivity, as if it's exhausted

/3
Read 34 tweets
#thread
Seeking help for a friend who has suffered long because of headaches, has been to multiple specialists/docs, they treat her temporarily, but her headaches come back in full force. She wants to get to the bottom of this and resolve it. Pls RT tweeps. 1/n @DrJoyeeta
The story is over a decade old. Her migraines started after 6 months after delivering her first child. She went to an ENT doc, who did MRI/CT scan and a few other tests. Reports were normal, was asked to take painkillers, since then she ends up just doing that. 2/n @SonaliVaid
Over the next few years, she realized the pain killers were giving her acidity and many a time, the vomiting also worsened, throwing out any and every medication she took. There were times she had to quickly rush to a hospital to get pain killers through IV. 3/n @HShewade
Read 17 tweets
“I’m not going to publicly name the business for obvious reasons, but a store manager called me back after thinking over the facts I shared with him.. I’m allowed to come in to buy a new couch #mask free! My current couch is making my #migraines worse, I can’t hold out any more.
I am so relieved!! Kind & decent humans do still exist. Don’t be afraid to advocate for yourself, even if you tremble as you do so.”

•Title III of the #ADA requires that businesses provide reasonable accommodations for those with #disabilities.
•The governors orders (not laws) say those who can medically tolerate a mask must do so.
•Why did corporate tell you to have designated hours for elderly & disabled shopping? Perhaps that is when you’re suppose to let said people come in?
Read 4 tweets
Umbereen S Nehal MD MPH: who is this person? Several people have been asking

A thread

Where am I from? Hooboy.
Let’s say, citizen of the world, human ping pong ball. Third culture kid. Genetic mutt

Born: 🇺🇸
🇵🇰 parents - when my parents born colonial rule, pre-Pakistan
To thoroughly annoy my Twitter bestie, @DrvanTilburg

Am an ENFP - a cross between Snoopy, Robin Willians, Ellen Degeneres, Dr. Seuss, Charles Dickens, Upton Sinclair

I border on ENTP - love new info and love to challenge in order to break through barriers or limitations
My great-grandfather was given title "Khan Bahadur" (brave). As a judge, a brown man under Colonial rule, he threw the book at a British attorney. "Learn the law" if in his courtroom. Hence my stiff moral backbone

My mom & me:

(She loves this song)
Read 52 tweets
“Hip” is socket (acetabulum) where femur (upper leg bone) inserts into pelvis (ilium/ischium). If hip were to dislocate, person would have excruciating pain & be unable to stand/walk. Sacroiliac joint (SIJ) is 17 cm square in area; vs. ilium & sacrum/coccyx (tail bone)....
SIJ commonly subluxes in pwHSD, generating painful ligament stretch interpreted as low back/hip pain in 13-30% pwLow Back Pain. When SIJ subluxes, Ilium rotates CW or CCW around a virtual transverse axis from Right to Left & through both mid-SIJs ....
Rotation of Ilium relative to Sacrum creates an oblique relationship of contours of the two bones. In a lean person, & depending on whether there is a CW or CCW rotation, the tail bone can appear to become stationed closer to the hip region on that side....
Read 15 tweets
It’s #Monday, I’m boozing it up at a 4 seat bar, the #barkeep is a long pourer, and I’m all fucking set if I get something stuck between my teeth.👇🙃 #RandomThoughts #drinking #OutAndAbout
Shooting the shit with a friend, she’s proud to be doing well with her plants - unusual for her.

The key was a #video explaining the benefits of pruning.

She needs REASONS. She got them.

Apparently, pruning in a particular manner stimulates growth hormones.
#RandomThoughts
Of course, this led to me initiating a discussion about the #movie I just watched on Hulu, called “The German Doctor.”

The main character was Josef Mengele. #ThisHappened

People, this is why I’m known in my circles as “The Black Hole Of Conversation.” SMTH
#RandomThoughts
Read 239 tweets
OYEZ OYEZ le temps est venu pour reprendre les bonnes habitudes et s'intéresser à de la neuro de base avec :

LA MISE A JOUR DE CE QU'IL FAUT SAVOIR SUR les #migraines

On est donc dans reboot, Se01Ep01

Qui va nous mener jusqu'aux nouveaux traitements par anti CGRP .
Cette première partie est assez fondamentale mais si j'ai pas trop raté mon coup, vous devriez enfin comprendre ces histoires d'aura, d'hypothalamus, de trijumeau, et surtout, pourquoi c'est utile dans le choix d'un traitement.
Et plus tard dans l'épisode 2 on verra les traitements, ce que les nouveaux changent, et comment repositionner les anciens.
Read 4 tweets

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