Discover and read the best of Twitter Threads about #myhealthrecord

Most recents (13)

"The ADHA said that almost half a million of these accounts have been created on purpose by Australians, with the remainder automatically set up by the government during its trial periods."
500,000 / 6.5million means only 7.69% actively opted-in to this system.
By October 19 last year, 1.147 million people had deliberately opted-out.
In case you were wondering what people think of this system. #MyHealthRecord
The opt-out rate is higher than that, but we don't know how much higher because ADHA is keeping the number secret.
I wonder why? #MyHealthRecord
Read 4 tweets
The #aabill is incredibly short-sighted & luddite. Even if the AU Gov. can coerce tech companies to backdoor encrypted messaging platforms, nothing's going to stop people from resorting to using free & opensource #crypto software like @GnuPG! #auspol 1/
Popular #crypto software is trusted because it's been written & vetted by members of a decentralized #opensource community which you can't coerce. If you want to make it illegal to possess @GnuPG in Australia because you can't backdoor it, then you'll kill the IT industry. 2/
Software devs/engineers use #crypto daily to safeguard the apps & systems we code & run against malicious tampering. The #InfoSec community also needs to be confident it can discuss and coordinate responses to security vulnerabilities before they can be patched in private. 3/
Read 11 tweets
This is about 10 minutes away. I’ll be watching, and may tweet a few random bits and pieces. #MyHealthRecord
I can hardly wait. #MyHealthRecord
The problem with watching on Parlview is that it’s a few minutes behind real time, because of the cleverness. The direct stream at… is less bad, but doesn’t have the cleverness. #MyHealthRecord
Read 88 tweets
My MP @RowanRamseyMP has a "#MyHealthRecord" given the all clear article in the local paper & now I have to respond /1
And my first response is yes, older white men on six figures with fab pension plans certainly don't have privacy as their #1 priority... but that feels a bit snarky... /2
And then I think about how incredibly vulnerable some people in my area are. And how incredibly nosey and gossipy people in my area are. /3
Read 9 tweets
Thread: There's no such thing as an "Opt out" from #MyHealthRecord
Chat with a disgruntled Sydney Health District Manager.
After "opting out", I asked #MyHealthRecords to confirm that no record would be created in the future without my consent. For instance, if I visited a new medical clinic participating in MHR (with the blanket opt in policy).
.@MyHealthRec refused to rule this out.
#MyHealthRecord refused to give any assurances of a permanent "opt out" during this phone call or in writing. Therefore I suspected that another record could be created, despite my "opt out".
Read 9 tweets
@EFF @munin This is relevant to the current #MyHealthRecord debate. Accountability has to be built-in AND enforced. You cannot rely on people to do right, you have to verify to ensure trust and reliability. #auspol
@EFF @munin This kind of ‘failure’ is a designed-in feature. We’ve known about this kind of ‘flaw’ for decades. This is what happens when privacy and security are not taken seriously. #auspol #MyHealthRecord
@EFF @munin Convenience leads quickly to complacency. Complacency subverts systems accountability, transparency, and other mechanisms intended to protect the system and the people in and around it. #auspol #MyHealthRecord
Read 9 tweets
Hey @billshortenmp @tanya_plibersek @TurnbullMalcolm to capitalise on heightened privacy concerns in the electorate, here are 9 election promises to make, to show you take privacy seriously:

1. Revert #MyHealthRecord to opt-in, and fix too-easy access controls
2. Tighten Privacy Act to prevent misuse of citizens’ data a la @bluemilk

3. Appoint a tough Privacy Commissioner & fund @OAICgov properly so they can robustly investigate cases like Facebook & Cambridge Analytica, and enforce the new Privacy Code

4. Stop #robodebt
5. Tighten the Privacy Act to match EU standards including higher penalties, right to algorithmic transparency and human review of automated decisions.

6. Repeal warrantless access to telco/ISP metadata
Read 4 tweets
Astonishing. Mark Burgess, chief of the Australian Police Federation representing more than 60k police officers, has called on the Turnbull government to urgently legislate to outlaw investigators from accessing the #MyHealthRecord system without a warrant…
I've never seen the police in Australia call for *less* access to data before. So this is a first #MyHealthRecord
“Someone is going to need to amend the legislation to build in that protection, not only for officers but, I would suggest, for the wider community.”
Read 6 tweets
Some doctors have spoke to are upset that I'm standing against the #MyHealthRecord, listing out possible benefits.

I've discussed risks + principles for dev of ethical tech. Let's reimaginine 1 of many ways we could make a good ehealth platform. #auspol

1/ Start with who owns the data. The people, not Docs/govt (much to their chargrin).

A platform needs to store data in a way which ring fences it so only the owner an see the raw data, like your texts, gmail, Dropbox, only you can see it - unless you share it. #MyHealtheRecord
2/ Secure by design. The platform should stand alone. Instead of a vault with 3 millions openable doors, think of your data in a vault with 1 door, that you control.

The platform doesn't need to integrate with other legacy garbage tech like mygov. #MyHealthRecord
Read 16 tweets
I've had a heap of press and individual queries on Australia's #MyHealthRecord over the last week. This is essentially centralised electronic health records that everyone will get unless explicitly opting out. Here's my thoughts:
Firstly, we need to acknowledge there's upsides and downsides; I want the right people to have my health info should they need it (especially in an emergency), but clearly I don't want that info falling into the wrong hands either.
On the upsides: it's crazy how manual the processing of our health records is today. Think about the amount of paperwork in your GP's surgery or the material you literally carry around to specialists if you need them. Then consider how easily accessible this is in an emergency.
Read 13 tweets
People interested in #myhealthrecord might also be interested in new legislation being introduced which will over-ride the Privacy Act to allow sharing of your administrative data #Auspol
In case it isn't obvious, gov needs this new Act because the Privacy Act prevents them from joining all your administrative data into one big project using info you provided in the last census.
The reason no one knows about this is because data governance frameworks are apparently a boring topic the media doesn't want to talk about.
Read 22 tweets
The problem with the #MyHealthRecord fiasco, apart from it being an abomination of UX, is that the MPs driving this are blind to the power of data and of impact of cybercrime to manipulate our society.

So here are some ex of reasons why MPs need to help shut this down: #auspol
Given the thousands of access points to these records, it is equivalent to making your entire medical history public, but only to medicos and the entire Australian Public Service, which is millions of people.
1/ Imagine a Prime Minister being rolled because of the release or stigmatized health information (i.e. mental health history).
Read 34 tweets
Here's someone who's highly engaged in politics, news and society but didn't know about #MyHROptOut until this morning.

If you're in media and wondering if this needs more coverage, here's your answer. #MyHealthRecord #Privacy
Opting out doesn't appear to be going well for people so far. I've seen multiple reports of long wait times on the phone and web server crashes.

I've you're planning to opt out, I'd suggest maybe not doing it today, but definitely not waiting too long.

#MyHealthRecord #Privacy
For the record, I've gone back and forward on opting out myself.

As a journalist with strong interests in tech and privacy, I really want to see the system for myself. Kick its tyres and experience its flaws and limitations personally. But ...

#MyHealthRecord #Privacy
Read 142 tweets

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