Discover and read the best of Twitter Threads about #myopathiceds

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@lunettaporchett @EstherAcosta126 @AHinkle628 @DrEReinhold @DenzAllie @CortDoesScience @BluesteinLinda @ehlersdanlosuk 1-) Oh! I'm there, in that spot, just about 2 years ago, I was able to touch both hands flat on the floor, with my knees straight. I haven't stretched in all of that time, & now, even though I am only about 2" away from it, while still keeping my knees straight, he dismissed...
@lunettaporchett @EstherAcosta126 @AHinkle628 @DrEReinhold @DenzAllie @CortDoesScience @BluesteinLinda @ehlersdanlosuk 2-) ...the idea of EDS almost immediately. I believe I was 50, at that time, when I decided to get serious about wanting help. Now I've just turned 51, & I hurt EVERY DAY! He said go have your kids diagnosed, & then let me know what happens. Meanwhile, I have been taking...
@lunettaporchett @EstherAcosta126 @AHinkle628 @DrEReinhold @DenzAllie @CortDoesScience @BluesteinLinda @ehlersdanlosuk 3-) ...Diclofenac pills for my shoulder problems, but they also seem to help my hips a little, & I think they take the edge off of the pain in my feet a little. I mean that & two acetaminophen tablets make it it slightly more bearable, enough that I get out of bed. I know...
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