Discover and read the best of Twitter Threads about #neurome

Most recents (6)

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"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)

2 of 4 authors are MDs

Free
mdpi.com/2227-9032/10/1ā€¦

I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
1/ Screenshot of abstract
2/

My overview:

Paper has lots of useful points & also helpful overall to show how the NICE guidelines for ME/CFS have changed dramatically in the UK from the 2007 version, with the updated approach being much more sympathetic regarding helping patients.

#MyalgicE #PwME #CFSME
3/

ā€œThe new NICE guideline for ME/CFSā€¦recognis[es] the prejudice and stigma that people with ME/CFS often experience in the absence of any specific diagnostic test.ā€

#mecfs #cfs #neurome #cfsme #myalgice #pwme
Read 26 tweets
šŸ§µ
Press release for New Zealand paper:

ā€œNew research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapsesā€

#MEcfs #CFS #PwME #PwLC

1/
2/

ā€œArising commonly from a viral infection, #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS), is known to cause brain-centered symptoms of neuroinflammation, loss of homeostasis, brain
fog, lack of refreshing sleep, & poor response to even small stressesā€

#MEcfs
3/

ā€œ#LongCOVID has similar effects on people and is believed to also be
caused by neuroinflammation.

Lead author Emeritus Professor Warren Tate, of the University of Otago's Department of Biochemistry, says how these debilitating brain effects develop is poorly understoodā€
Read 14 tweets
šŸ§µ
ā€œScottish Government backs NICE guidelineā€

actionforme.org.uk/news/scottish-ā€¦

ā€œIn December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholdersā€¦to gather
their views on the NICE guideline on #ME/#CFSā€

#MEcfs #PwME #ChronicFatigueSyndrome

1/
2/

ā€œFor this independent stakeholder review, a total of 37 stakeholders contributed. This consisted of 14 clinicians, 10 third sector #ME/#CFS organisations/academics & 13 people with lived experience of #MECFS,
(contd.)ā€

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME
3/

ā€œand a further 93 people responded following an online survey [on the 2021 NICE #MECFS guidelines] that was
distributed to a wider stakeholder group. The response from the majority
of stakeholders was overwhelmingly positiveā€

#NeuroME #CFSME #MyalgicEncephalomyelitis
Read 5 tweets
šŸ§µ
ā€œME/CFS: What Psychiatrists & Psychologists need to knowā€ by @DoctorsWithME (March 2022)

doctorswith.me/me-cfs-what-psā€¦

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #NeuroME #MEcfs #CFS #PwME #CFSME

1/
2/
ā€œ#ME/#CFS is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children, and all social classes. About 75% of sufferers are femaleā€

#MyalgicEncephalomyelitis #MEcfs #PwME #CFSME #ChronicFatigueSyndrome
3/
ME/CFS ā€œhas a worse quality of life score than many other serious illnesses including cancer, stroke, rheumatoid arthritis and MS. 25% of patients are housebound or bedbound.ā€

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SevereME
Read 10 tweets
Press Release from NICE about its new draft #MECFS guidelines that are out for consultation

meresearch.org.uk/nice-guidelineā€¦

ā€œThe draft guideline also highlights the importance of ensuring that people remain in their ā€˜energy envelopeā€™ when undertaking activity of any kindā€

#CFS

1/n
2/n
Draft NICE guidance ā€œrecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no ā€˜one size fits allā€™ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersā€
3/n
ā€œBecause of harms reported by people with #MECFS + the committeeā€™s own experience of the effects when people exceed their energy limits...any programme based on fixed incremental increases in physical activity or exercise eg GET should not be offered for treatment of ME/#CFSā€
Read 13 tweets
[Thread]
ā€œDoctors examining possible link between #chronicfatiguesyndrome and #COVID19: For many, chronic fatigue syndrome develops after a viral infectionā€ by Dr Danielle Weitzer and Dr Christie Richardson

abcnews.go.com/Health/doctorsā€¦

#LongCovid #MEcfs #CFS #PostCovid #PVFS

1/n
2/n
ā€œBy this point, many people can identify symptoms of #COVID19 -- fever, fatigue, shortness of breath -- but fewer know that those can occur after a successful recovery* and closely resemble another illness: #chronicfatiguesyndromeā€

*I dislike using ā€œrecoveryā€ in this way
3/n
ā€œā€˜About 75 to 80% of #chronicfatiguesyndrome cases are post-viral in nature,ā€™ estimated Dr. Mark VanNess, ā€˜The viral infection and following immune response are precipitating causes for long-term symptoms.ā€™ā€

#LongCovid #PostViralSyndrome #PostViralFatigueSyndrome #MEcfs #CFS
Read 6 tweets

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