Discover and read the best of Twitter Threads about #nihrecover
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1st #NIHRECOVER adult cohort results are out today in @JAMA_current, proposing an expanded working definition of #LongCovid (aka post-acute sequelae of SARS-CoV-2 [PASC]). Led by @tthaweethai, this is a dense paper with a ton of results. Buckle up! 🧵
jamanetwork.com/journals/jama/…
jamanetwork.com/journals/jama/…
#NIHRECOVER Adult is a cohort study of ~15k adults with/without #COVID, followed prospectively. They answer symptom surveys every 3 months and do additional tests yearly. 93% of cohort has been enrolled; this paper includes 9,764 participants. recovercovid.org
Main goal of this paper is to establish an expanded, working symptom-based definition of #LongCOVID for research purposes. Please note we do not propose this as a clinical definition right now pending further validation & refinement.
My son Alex ran 18 miles today.
He had Long Covid in 2020, with severed POTS until he got an experimental stem cell transplant that fall. He had a headache for 7 straight months, a rhr of 125, couldn't walk half a mile.
Why isn't the #nihrecover trialing stem cells in LC?
He had Long Covid in 2020, with severed POTS until he got an experimental stem cell transplant that fall. He had a headache for 7 straight months, a rhr of 125, couldn't walk half a mile.
Why isn't the #nihrecover trialing stem cells in LC?
He set a goal for himself of running the length of a marathon by age 22. He is almost there. He will not race in a marathon because of risk of reinvention around so many people.
I did not have the same treatment because we could not afford two. I chose him because he has his whole life ahead of him. I don't think it would work as well in older people due to the relative shortage of stem cells in the bone marrow.
