Discover and read the best of Twitter Threads about #nocure

Most recents (2)

Wanted - Research journalist who is willing to make public thousands of #Gadolinium Toxicity Survivor stories. Requirement for the selected person - Share stories to drive awareness with the goal to create change.
With over Half-Billion injected, if just 3% have symptoms...
...that equates to 15M (15 million) individuals who are suffering, haven't connected the dots, have been misdiagnosed or worse - left with no help to fend for themselves. There is #NoCure or Antidote for this #Toxic rare earth metal.
Reach out to me at if you think you might be the right person to help write and bring visibility to the worst medical crisis since Radium Girls of WWII.
We are organized and have fact based studies, medical journals, real life experiences to be heard.
Read 8 tweets
February 29 (the rarest day) is #RareDiseaseDay and this matters a great deal. It matters to me and my family, but also to millions of others who have stories similar to ours. If you follow me on @Twitter, you probably know some of my story.
I don’t want to bore you by telling it again, but I do want to talk a bit about what I’ve learned since my #diagnosis and since becoming a #RareDisease #advocate.
The first thing I learned was that even though it was a relief to have a diagnosis...(i.e. some sort of validation that there was a reason I didn’t feel well my whole life), it was really really hard to come to terms with having this new label.
Read 27 tweets

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