Discover and read the best of Twitter Threads about #nof1
Most recents (2)
CDC Disclaimer of posted opioid calculator here.
If it doesn't work for cancer care, palliative care, hospice, or for kids less than 18, it doesn't work for ANYONE.
IT DOESN'T WORK AT ALL because it fails to account for patient characteristics for anyone.
IT DOESN'T WORK AT ALL because it fails to account for patient characteristics for anyone.
#nof1 trial update: I’m mom to Maggie, age 6, #PMM2CDG. I’m not a doctor or scientist, and anything in this post should not be taken as medical advice.
140 days ago Maggie started taking 5mg of epalrestat 3x daily. @DanoCar9 and I are so excited to share our experience so far
140 days ago Maggie started taking 5mg of epalrestat 3x daily. @DanoCar9 and I are so excited to share our experience so far
Most importantly, we haven’t seen any negative side effects and the drug appears to be safe. What we have seen are some HUGE improvements in Maggie’s speech, muscle tone, and balance!!
Here’s video of a recent bike trip – we’re still working on steering.
Here’s video of a recent bike trip – we’re still working on steering.
Maggie can sit more controlled, not as wobbly like before. See videos below, first of Maggie getting ready for Kindergarten practicing her letter names and sounds, then of her just recently where we practiced sight words in almost the same sitting position.
