Discover and read the best of Twitter Threads about #painsomnia

Most recents (8)

Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
My holiday spoons are fickle. #MySpoons
Yesterday - the day after I ran out of my pain meds - I pulled a muscle behind my boob.

Thank goodness #spoonie Twitter was here to rescue me.
But now I get to spend Christmas

- in more pain than usual
- with more #painsomnia
- and less medication & other methods of easing the pain
Read 12 tweets
My sister brought me coffee with the breakfast she made me.

YAY!!!!
[The GIF of a cup of coffee whose bubbles look like it’s smiling agrees with me!]
A protein-heavy breakfast already changes my whole day for the better.

I can no longer do this for myself until hours after I’m up, if at all. (Morning stiffness + stairs.)
Read 8 tweets
A3. From home I observed #ACR18 featuring patient interviews like the one with @DawnMGibson.

It gave me so much hope & vidation about #painsomnia. #CreakyChats
A3. Iearned about patient posters & through community representatives who attended, that researchers and doctors were observing and listening. #CreakyChats
A3. That meant so much to me. I'm still thinking about it and browsing and observing material from the #LupusChat attendees, @CreakyJoints and @DawnMGibson.

What a well timed moment to be be newly diagnosed with Arthritis & Fibro.

#CreakyChats
Read 3 tweets
A4. Yes because I trust your word @DawnMGibson.

I am newly diagnosed with Arthritis in my right hip. I've been complaining about my hip and walking with a cane for years. #SpoonieChat
A4. And I learned so much for #ACR18 and @CreakyJoints and @DawnMGibson's #Painsomnia interview.

#SpoonieChat
A4. It gave me lots of opportunities to learn about #fibro (which is often treated by Rhematologists.)

And I'd never heard of patient posters. There was so much sharing. I was so imoressed with the patient involvement at #ACR18.
#SpoonieChat
Read 3 tweets
😆🤣😂I died when @DawnMGibson said that some sleep hygiene tips are muggle advice! #ACR18 #Painsomnia
"Magical beings such as myself don't always do well with that." #ACR18 #SpoonieChat #Facts
I much prefer the idea of a sleep PLAN. You don't hear people talking about our #painsomnia struggle outside of giving the standard advice that doesn't work for is. #ACR18
Read 14 tweets

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