Discover and read the best of Twitter Threads about #patient

Beth Steckler (she/her) 🇺🇦

Almost 25 years ago I entered the world 🌍 of #raredisease when 1st my husband was dx w #PRSS1 & then our children.
What I’ve learned is #HealthcareInAmerica is brutal & often #harms those most in need.
The system is broken.
There is no disguising it.
I believe that our 1

#Healthcare system truly only benefits a small populous; individuals that are mainly #healthy & don’t belong to a marginalized group.
There are monumental system issues that need to be addressed that impact #medicalprofessionals ability to provide necessary 2

care. I understand that. I believe that #patients, #caregivers #medicalprofessionals need to work in collaboration to push back on the systemic issues that plague the system. I absolutely can give & find grace in many situations.
What I have no time for is the void of 3/

Read 19 tweets

Honestly #medtwitter why is it so damn had to have a consistent plan in place for #patients w #complexhealth issues when person necessitates hospital frequently?

Also, why get upset with #patient when lack of coordination between #medicalprofessionals, assumption of #patient 1/

goals as well as often your own biases result in care that is subpar & harmful & leads to said hospitalizations 🤦🏻‍♀️. I understand you all are in a difficult position yourselves but you definitely have much more #power than #patient. 2

Also, why does it seem so difficult for #hospitalists to pick up phone 2 specialists? I know many of you work hard to acknowledge your biases, to incorporate the #patients voice in care planning, BUT if you are not one, YOU are harming #patients. #HealthcareInAmerica 3/

Oren Gottfried, MD

@OGdukeneurosurg

What in the world is going on here on this awake #patient ?

Hint: it is not a c1-2 puncture, which is used when lumbar puncture is not an option.

Occipital puncture into 4th ventricle in awake patient.

Berci Meskó, MD, PhD

@Berci

@ePatientDave

I'm ecstatic that I was finally able to cover patient design in a paper, as it is a topic I present in each and every one of my keynotes.

jmir.org/2022/8/e39178

This is my first paper as a physician and researcher that I co-authored with a patient scholar, @ePatientDave.

The paper reports that patient design, instead of patient centricity, should lead healthcare leaders in designing products, facilities or technologies for patients.

Patient design means we involve patients on the highest level of decision-making.

While patient centricity is a passive process for patients as whether their opinions would be used in the final design of a product is the decision of those finishing the product.

Sebastian Casu

@casusebastian

#Notaufnahme|n arbeiten seit langem über jedes Limit hinaus. #Notfallmedizin|ische Strukturen & Prozesse im Zusammenspiel zwischen #Rettungsdienst, ambulanter Versorgung & stationärer Behandlung sind veraltet.
Zwischen d. Fronten stehen d. #Notaufnahme|n.

google.com/amp/s/amp.zdf.…

Einerseits stets zur #notfallmedizin|ischen Versorgung verpflichtet, werden d. überlasteten #Notaufnahme|n von vielerlei Seiten bewusst missbraucht. Andererseits stehen in vielen Beispielen keine ambulanten & rasch anzusteuernden Ressourcen als Alternative zur Verfügung.

Gleichzeitig gehören #Notaufnahme|n zu den letzten Abteilungen in Krankenhäusern, die keine Personaluntergrenze erfüllen müssen. Auch für die Refinanzierung von (Funktions-) #Pflege|kräften fehlt ein eindeutiges Statement von G-BA & Gesetzgeber.

Read 7 tweets

Anna Bonkhoff

@annabonkhoff

Exactly 7 years ago, I spent #StrokeAwarenessDay undergoing emergency #thrombectomy for #basilar artery occlusion. #BAO

Today, I'm still in awe and celebrating how #modern #medicine saved me from locked-in syndrome and enabled me to live a normal life, against all odds.

1/ 🧵

2/ So far, I have avoided sharing this information as part of my professional life, fearing it would somehow disqualify me as a credible clinician-scientist. Finally, I realize that the experience only strengthened my resolve to give future patients the second chance I was given.

3/ What happened in brief:

I was a healthy, 25yo medical student, all excited to have finished the first 10K run of my life not even 5 hours before my family reacted #FAST and called 911.

Read 20 tweets

Thread 🧵: Reflections of a Parent/Caregiver After Six Years Implementation of CDC Guidelines (warning long but I am very interested in feedback)

Since babies, my kids, have intimately known #pain. At one time their #pain was intermittent & #acute. Sadly, they now struggle 1/

#chronicpain & are young adults. Our kids 1st 13/16 years of life, our family had a #safetynet, their #pediatrician. He was highly intelligent, compassionate, he challenged the system & in the most authentic sense #partnered with families. #Pain was not a major concern when 2/

the kids were under his care. The nature of their disease often brought us to the ER & hospitalizations. The hospitalizations resulted due to inability to manage #pain, dehydration, & other issues caused by a flare in their #disease. My husband & I attempted to minimize the 3/

Read 45 tweets

#meshinjuredpatients

@SusanMorgan19

@UKHouseofLords

Schemes for #patient injury

Cumberlege Report page 217
#Redress Agency

First Do No Harm
@UKHouseofLords @NHSEngland @sajidjavid @AnthonyMangnal1

immdsreview.org.uk/downloads/IMMD…

#patientsafety #ethics #morals #device #surgeon

@healthdpt

#mesh injury @healthdpt
#fund for #NHS treatment injuries @NHSEngland @sajidjavid @AnthonyMangnal1
@JuliaCumberlege @APPGFDNH

#redress #payments for #mesh & other #NHS injuries

Read 6 tweets

Tom Wiser

@TomWiser

@moderna_tx

Just a friendly reminder @moderna_tx told the @SECGov that the @US_FDA defines #mRNA as gene therapy. And called it an unprecedented new category of #medicines tho they really want that #vaccine classification anyways for liability protections & fear the public wouldn’t take it.

https://twitter.com/TomWiser/status/1494656849542619138

They know the #COVID19 #vaccine isn’t a vaccine but human #gene #therapy.

@US_FDA

The @US_FDA #fda reaffirmed their definition of modified viral #nucleic acid that alters #CELL Jan 30th 2020 #COVID

Read 16 tweets

@ibdgirl76

@ibdgirl76 What I really struggle w & it’s not just re the lack of care for those in pain & stigma they face, overall the system & many (not all) inds wi not set up to address issuers #patients & #caregivers have re care. There is literally no place to go. Yes, there are 1/

@ibdgirl76

@ibdgirl76 #patient representatives but they are there essentially to watch out for health facility. File a concern & most times you are not part of the process, nor do you know the outcome. There literally is a lack of protection for #patients. Maybe some clinics or healthcare 2/

@ibdgirl76

@ibdgirl76 facilities better than others but often #patients are left w no #voice. I understand, but in NO way condone aggression, physical harm, threats or name calling to #medicalpersonnel. They deserve a safe place to work, yet I understand the rise of these incidences 3/

Read 6 tweets

Prashant Jaju 🇮🇳

@Prashantjaju

Making money from #STOCKMARKET is a most BORING REPITITVE JOB..
One just need to keep it simple, Boring & need to repeat it every day, week, month, year.

And in this #Thread will try to explain how to do it in such way..

You can Start it with 3lk-30lk-3cr..
It's up to u.. 🤗🙏

Divide your Capital in 3 parts..
1-1-1 lakhs or 10-10-10 lakhs or 1-1-1 crore respectively..

Let's name them

Part 1 : Fix Income Source
Part 2 : Make money with market
Part 3 : Wealth creation by Compounding

Below is the description of all 3 parts.. 👇

Part 1 : FIX INCOME SOURCE

We all know that stock market is uncertain & beyond anyone's control. So if we enter in it as a Full Time Job then 1st thing we must do is to fix our earnings for our family's daily livelihood.
So for that we need to make our Fix Income Source from it.

Read 10 tweets

Priyanka Vasantavada

@vvpriyanka

I wonder whose bright idea it was that if a #vagina managed penetrative #sexual activity, it must be pliable to #insertion of the speculum 😒. Whoever that was definitely disregarded the physiology of sexual #arousal & vaginal changes in the moment that facilitate #penetration.

@vagina_museum

@vagina_museum shows that everyone's apparatus is different then how can #Gynecology stick to a one size fits all model? #publichealth should strive to develop minimally invasive self administered #screening tests & #gynaecologist must #research on making procedures comfortable.

researchgate.net/publication/22…
This shows that topical #anesthetic agents reduce #pain and #discomfort during speculum manipulation. Why can't the usage of topical #anesthesia be a #standard process in #Gynecology? Why such blatant disregard for #patient #comfort? 😠 #misogyny much?

Read 5 tweets

Cat Fraser

@catsocialintel

PHASE 1 LAUNCH! New study reveals yawning gap in medical care for energy-impaired
thisiswellless.com

#pwME #NEISvoid #FBLC #LongCovidWork #LongCovidCosts #TreatLongCovid #CountLongCovid #miilionsmissing #HealthEquity #patientled #medtwitter #wellless

A THREAD >

@long_covid

Long-Covid visual report quantifies money, time, work and energy spent on the battle to get medical care, and introduces new language of the “well-less” to improve patient awareness and support.
@long_covid @longcovidwork @actionforme @chronicinclude #EDS #PoTS #postviral

@BupaUK

I tracked and analysed my own health interactions from 2020 across nine different self-data sources, including @BupaUK @Bupa , @LloydsBank , @timspector (Zoe Covid Symptom Tracking App(, email, SMS, mobile and calendar data #Datavisualization #selfanalytics #dataviz

Read 25 tweets

WorldStrokeAcademy

@WorldStrokeEd

@SVINJournal

#WeekendLecture
#HistoryofEVT

It’s no secret that #EVT for AIS has been a complete game changer for the field resulting in dramatic reduction in death & disability

Join us to explore the #history of EVT in collaboration with @SVINJournal, to celebrate the inaugural issue

@Mahmoudneuro

Many thanks to @Mahmoudneuro, #RaulNogueira and @DiogoHaussen whose review entitled:
👉“Tx Advancements in the Endovascular Management of Stroke” celebrates the advances in #ETV

🆓 #openaccess

✅ahajournals.org/doi/full/10.11…

1st #Fun fact: Interventional treatment of AIS dates all the way back to 1950s‼️
Sussman & Fitch reported 3 cases of IA infusion of fibrinolytics
Didn’t work 😫. Probably because they were performed in a non-hyperacute fashion
But this laid the foundation for years of refinement

Read 21 tweets

Pavan Bachireddy

@pbachi

@elhamazizi

1/ Excited to share how T cell therapies kill #leukemia!! multi-omics + new #computational #singlecell tools for longitudinal analysis 👉unexpected answer! cell.com/cell-reports/f…

*👏* @elhamazizi! 🙏 @dpeer Cathy Wu @MDAndersonNews @CPRITTexas @ColumbiaBME @sloan_kettering

2/ We studied donor lymphocyte infusion (DLI) - an #Immunotherapy for relapsed #leukemia after #BMT & the #og of #celltherapy. Previously, we showed DLI reversed T cell exhaustion - but didn't know why/how/which T cells were responsible...
ashpublications.org/blood/article/…

3/ To address these ?'s, we modeled intraleukemic T cell dynamics by integrating longitudinal, multimodal data from ~100K T cells (!) during response (R) or resistance (NR: nonresponder) to DLI.

Read 18 tweets

@OptumRx

Dear @OptumRx & @SanfordHealth you are NOT his #physician. You know nothing of his #health hx. Two years ago #Sanford #Bismarck #pain clinic pulled all #patients off #opioid #pain medications. This was not #patientcentered care, but care deemed appropriate BY administrators 1

@OptumRx

Now @OptumRx & @SanfordHealth #insurance sending out letters re #opioid #pain #medications. My son had to move from a #Sanford clinic to another clinic due to #abandonment. Yep, abandonment. Plain & simple what you did was harmful & not based on #patients needs. You need 2

@SanfordHealth

to look at research, that shows the harms of what u r doing. @SanfordHealth administration in Bismarck informed me 2 years ago when all #patients pulled off #opioids that it was the ‘national standard’ of care established by @CDCInjury @CDCDirector. The guidelines are NOT 3/

Read 9 tweets

https://twitter.com/elliottjsyd/status/1451671874685992960

Um absolutely adore this thread! I must read for #NEISvoid #CPP #RareDisease. My kids experienced much of what is mentioned in thread. 1st they have a rare disease, 2nd had a rare medical procedure to try to address symptoms, it caused complications. My kids now have T3 1/

https://twitter.com/elliottjsyd/status/1451671874685992960

the ‘care’ they receive has often been #traumatic as they don’t fit nicely into a box 📦. It’s because of their experiences (& my husbands) that I advocate. As young adults they still have to interact w the #healthcare industry but they are distrustful ( & rightly so). So many 2/

Physicians do not understand #medicaltrauma & their roles in it. I know it’s hard to be a #physician today, I know it’s hard to be in #healthcare but to dismiss, shame & blame a #patient is harmful not only psychologically but physically. 3/