Discover and read the best of Twitter Threads about #patientchat

Most recents (2)

Excited to share our (@BlakeJodian @kartc @hmaddd28 @BobbieLMcKee @chris_cogle) paper on #COVID19 #VaccineHesitancy in patients with #Cancer & caregivers, & impact of an educational #Webinar in Healthcare (@MDPIOpenAccess)! A #tweetorial... #MedTwitter 1/ mdpi.com/1041036
-Pre-pandemic rising #VaccineHesitency (#PublicHealth threat by @WHO in 2019)
-April 2020, Fisher et al (@AnnalsofIM) reported ~57% of 991 reported the intention to receive a #COVID19Vaccine (⬆️since then)
-Limited data on successful interventions to combat #vaccine hesitancy
2/ Image
-Jan 8, 2021 @UFHealthCancer, @WellFlorida, & CCRAB hosted a Webinar to improve knowledge & vaccine enthusiasm amongst Cancer and caregiver populations in North/Central Florida
-264 participants
-205 completed pre-Webinar Survey
-105 completed post-Webinar Survey
#patientchat 3/ Image
Read 10 tweets
Finding connections & advocating has been so helpful for me.

Here’s a thread attempt, w/my limited/developing advocacy skills.

Tips/pointers/thoughts from #RareDisease, #chronicillness, #disability, #NEISvoid, #hcldr, #patientchat communities?

Let’s use #RareAdvocacyAdvice
My journey started with making social accounts, then posting a few thoughts, ideas, questions, & pleas for help. I used hashtags such as #RareDisease, #ChronicIllness, #Disability, #NEISvoid, in general, & then some that are more specific to my condition.

#RareAdvocacyAdvice
I was very fortunate to find an org that was developed to specifically for my #RareDisease (@MitoAction). They have incredible support, including weekly calls.

If there’s not a specific community for you yet, you could make one like @OnceUponAGene did. 💚

#RareAdvocacyAdvice
Read 11 tweets

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