Discover and read the best of Twitter Threads about #patients

Most recents (24)

Alright, I’m just going to announce this: cognitive behavior therapy CBT is NOT an appropriate first-line treatment for poorly understood physical conditions such as #insomnia, #chronicpain, #MECFS, etc. It is a wastebasket that has enabled medicine to toss #patients a 1/
wastebasket because they don’t know any to admit they don’t know what’s wrong, which causes the conditions themselves to be psychologicalogized, minimized and trivialized. This has a chilling effect on biomedical research for these conditions. The numbers touting the success 2/
of CBT are easy to fudge, given the circular reasoning the theory is largely based on. Not to mention the damaging effects to patients when they supposed didn’t “think” hard enough to get better. Since #PatientExperience often has no credibility with medical practitioners, we 3/
Read 5 tweets
#Covid19 #Patients who need blood for #Plasma_therapy may contact the following(these persons ,being recovered from Covid-19,are ready to donate their plasma)

1) For #A+ blood :
03334599345 ,03324635437,03214881499,03405044744, 03404198871 ,03334599345 ,03012226886 :1
03012226866,03354917428/03354917426, 03224233416, 03244786111

2) For #B+ Blood :
03237408916 ,03224173786, 03367044081, 03376207548 , 03055310811 , 03153932935 , 03360822050 , 03422854012 , 03137822547 , 03328794032 ,03051819120 , 03043066366

3) For #O- blood* :
03014060483 :2
03224280633 , 03244786111

4) For #0+ blood* :
03315519033 , 03097902717 , 03054532257

5) For #A- blood*
03224664551 , 03066640094

6) For #B- blood*
03026609743.

Thanks to Dr Babar Butt(Associate Professor)
kindly donate your plasma if you have been coronavirus patient :3
Read 4 tweets
My biggest challenge is to ensure that affected people are treated with compassion, and not stigmatized. - Health Minister @drharshvardhan

Let us take special care in ensuring that we empathize with and provide support to people and families infected with #COVID19.

1/n 🧵
We need to reach out to those people who are afraid to come forward & seek #COVID19 treatment because of the stigma we have attached. Delayed treatment due to the stigma & fear is costing us precious lives.
- Director, #AIIMS
#SayNoToStigma #SaveLives
2/n
How to defeat #Stigma in the #FightAgainstCoronavirus?

1. They are people, not victims/cases

2. Don't disclose info about affected people

3. Rely on authentic sources (@MoHFW_INDIA /@WHO etc)

4. Share positive stories

5. Respect #CoronaWarriors

@COVIDNewsByMIB @MIB_India
Read 34 tweets
It’s a sunny Saturday. I’m in clinic.

I’m on the phone. Sure, virtual care is great for some conditions. But not for all.

The 73 year old with shingles. The 2 year old with a pulled elbow. The 66 year old with heart failure. The 56 year old who keeps mixing up her words.
I love being a doctor. I am fiercely protective of my #patients.

There is a lot I do as a #familydoctor. But sometimes my patients need more specialized care.

Healthcare for my patients has been delayed by #Covid19. They are in limbo.

I worry about that.
Waiting has a cost. While some people are okay, some patients deteriorate on #waitlists. They get sicker. Some of them die.

Our healthcare system was already working at 100% capacity before the #coronaviruspandemic. We cannot afford to lose even one family doctor or specialist.
Read 15 tweets
The initial logic behind using a single #ventilator to support #multiple #patients is compelling, and speaks to our most basic urge to rescue.

A long thread, to outline challenges that must be solved for it to work in #COVID19
There are certain situations in which it would work well – in patients with fundamentally normal lungs, whose compliance can be easily matched and kept matched, who can be deeply neuromuscularly paralyzed, and ...
for whom there is a plan for individualized ventilators to become available soon to make vent weaning/liberation possible.

(This is important: you can NOT wean multiple patients from a single ventilator, and there has to be a plan for eventual extubation)
Read 22 tweets
1/10 It’s hard to shut my mind off in the face of #COVID19. As #AcuteCareSurgeons our day/night/weekend jobs taking care of #injured patients and #patients needing #EmergencySurgery for abdominal and soft tissue diseases do not dissipate.
2/10 Yet we are also experts in #CriticalCare and need to prepare to care for patients w/ #respiratoryfailure and #shock due to #COVID19. We are implementing #plans based on the little evidence that exists while trying to stay #safe, #healthy, and #resilient.
3/10 We step into the trauma bay as others threaten to shoot our patient (but police can protect us). We do operations where rHepC/HIV risk is high (but PEP can protect us). We don't shy away from blood, feces or dead flesh up to our eyeballs (but we have #PPE to protect us).
Read 10 tweets
(Thread) Reflecting today after an incredible few days in Washington DC at #HDpalooza & #NHPC20 which gave attendees the best of both health data & health policy innovation worlds.
@RasuShrestha @ePatientDave @BeLikeLight @vishnu_saxena @DrSimpsonHSR @HealthPrivacy @coffeemommy @KBDeSalvo @fredtrotter @DCPatient 2) How can I express how grateful I am to have attended as a patient scholar?! What an amazing, enriching experience! Thank you @AcademyHealth for continuing to prioritize & model #PatientsIncluded! Clearly it can be done. Conference organizers, take note. #HDPalooza #NailedIt
@RasuShrestha @ePatientDave @BeLikeLight @vishnu_saxena @DrSimpsonHSR @HealthPrivacy @coffeemommy @KBDeSalvo @fredtrotter @DCPatient 3) The takeaways are clear:

👉Patients have a RIGHT to their health data & the boundaries of access, control, #privacy, & choice have never been questioned, contemplated, & examined more or pushed farther than ever before.

#HDPalooza #NHPC20 #PatientsIncluded #UnblockHealth
Read 7 tweets
Join in and share your insights!
Today, I’ll be tweeting ideas & thoughts about #Integrating #ONhealth care as part of an amazing learning conversation with @wwodchis @JodemeGoldhar @Dr_KerryK @jayshaw29, @baker_ross, @Dr_SteeleGray @wwodchis & @Anne_Wojtak from @ihpmeuoft
A map of our current #ONhealth system shows various functions, structures and organizations, but without a clear shared purpose:
So then, without a clear shared purpose, how can #patients, caregivers & providers have an experience of an #integrated #ONhealth system?

Start by building up from the core of care delivery:
Read 23 tweets
This #WorldCancerDay find out how we help facilitate and regulate cancer research in the UK.
Our Research Ethics Committees (RECs) review and approve around 6,000 studies every year, many related to cancer. hra.nhs.uk/about-us/commi…
Richard Stephens is entering his third decade working as a patient advocate and ensuring patients are involved in the design of cancer trials. Read his blog: hra.nhs.uk/about-us/news-…
Read 7 tweets
✝✝✝
#LASAINTEBIBLE|#Deutéronome11:14«JE donnerai à votre pays la pluie en son temps, la pluie de la première et de l'arrière-saison, et tu recueilleras ton blé, ton moût et ton huile;»#AMEN, #Maranatha, #MerciJÉSUS !

#Shalom
#Chrétiennement
__
saintebible.com/crossref/deute…
✝✝✝
#LASAINTEBIBLE|#Jérémie5:24«Ils ne disent pas dans leur cœur:Craignons L'ÉTERNEL,notre DIEU,Qui donne la pluie en SON temps,la pluie de la première et de l'arrière saison,et qui nous réserve les semaines destinées à la moisson.»#AMEN,#Maranatha,#MerciJÉSUS
#Shalom
#Chrétiennement
Read 6 tweets
I've had 24 hours to think about @TheACMG's decision NOT to support #genetic counselors bill HR3235, The Access to Genetic Counseling Act. @TheACMG does not support genetic counselors right to order genetic testing. 1/5
@TheACMG I am a certified genetic counselor with >25 years experience in the field. I've been the senior author on 4 published papers re: 'errors in genetic testing', including errors due to the wrong test being ordered. 2/5 #gcchat
@TheACMG Errors documented have resulted in #patients having prophylactic surgeries they did not need, being diagnosed w late-stage cancers, and huge waste of #healthcare dollars. All of this because a #genetics professional was not involved in the ordering process. 3/5
Read 5 tweets
"People are dying."

Elizabeth has witnessed the difference between the UK and US health systems. She knows the human cost of high prices. Don’t allow the US to sabotage access to meds on the #NHS.

EPIC THREAD!!!...
There has been a lot of debate on the impact of a #tradedeal with #Trump on #NHS medicine prices. Here’s a thread detailing why people are right to be worried… 1/
Firstly, the US has history. #Bigpharma spends more influencing politicians in Washington than any other industry. So the US has repeatedly used #trade agreements to force changes on countries that will boost the industry’s profits. 2/
Read 27 tweets
@jenbrea Hey! Yes several people spoke on that topic at the recent #ILADs conference I was at 👉 and remember this case history which found that a woman treated w/ antibiotics to target persistent #Bartonella had substantial improvement in EDS symptoms: ncbi.nlm.nih.gov/pmc/articles/P…
@jenbrea 2/2 As for #mast cell activation in response to persistent #pathogens...there is extensive literature on how a range of bacterial, viral and fungal pathogens can drive #MCAS-like symptoms 👉 for example: ncbi.nlm.nih.gov/pmc/articles/P…
@jenbrea 3/3 There is even a receptor common in #connective tissue who’s activity controls mast cell activation in response to bacterial signaling molecules that drive #biofilm formation: ncbi.nlm.nih.gov/m/pubmed/31278…
Read 11 tweets
1) So you get a copy of your medical records & dive in, reading line by line, trying to make sense of your new lung #cancer diagnosis.

“Wait a second, this doesn’t sound right. This is a mistake. I don’t have a history of a heart condition & I don’t smoke cigarettes.
#PtExp
2) You call your oncologist’s office to report the mistakes you found & ask to have it updated. You are told to write down the correction & fax it to the office. You do exactly that.
#PtExp #addendum #EHR
3) At your next follow up appt a month later, you ask the dr if your record was updated & the correction was made.

The dr looks at you like:

#PtExp #addendum #EHR
Read 16 tweets
So @ANZUPtrials #ENZAMEt #PCSM results fro #HRQOL were presented today at #ESMO19, here are some of the headline outcomes 1/5 #InternationalCollaboration #RCT
@ANZUPtrials Acknowledgements usually come last but we can't do these studies without #patients. So our very sincere thanks to the 1125 men living with mHRPC #PCSM who volunteered to take part, have the treatment, & fill out #HRQOL questionnaires! #ENZAMET @anzupartners #ESMO19 2/5
@ANZUPtrials @anzupartners In the @ANZUPTrials #ENZAMET study we measured #HRQOL using @EORTC_QLG's #QLQC30 (global qol, social, physical, emotional, functional domains) & Prostate Cancer module #PR25 at weeks 0, 4, 12, then 12-weekly until clinical progression #PCSM #ESMO19 3/5
Read 7 tweets
22. United States decided to label #IRGC terrorists. But who are the real terrorists? Who created, trained, armed & financed the worst terrorist groups in the world?

#Hypocrites #DoubleStandards #Liars #Warlords #USRealTerrorists
1 to 20. United States decided to label #IRGC terrorists. But who are the real terrorists? Who created, trained, armed & financed the worst terrorist groups in the world? 🤨👇🏼
threadreaderapp.com/thread/1166502…
21. United States decided to label #IRGC terrorists. But who are the real terrorists? Who created, trained, armed & financed the worst terrorist groups in the world? 🤨👇🏼
threadreaderapp.com/thread/1170740…
Read 90 tweets
Petit thread pour vous expliquer mon quotidien de #patient en #dialyseàdomicile.
Je dialyse 4 fois: lundi/mercredi/vendredi/dimanche.
Je dois bien sûr gérer ma #dialyse ces 4 jours, mais pas que ! 1/
Je dois également gérer l’osmoseur qui permet de purifier l’eau de ville car elle n’est pas assez pure pour la dialyse.
Concrètement, je dois changer des filtres tous les mois et régénérer en sel toute les semaines.
Je dois également faire 2 tests avant chaque dialyse. 2/
30 minutes avant de dialyser, je dois préparer ma machine en montant le circuit, paramétrer la machine, préparer mon champ de dialyse. Qd mon mari est là, je me pique et je me branche. (Photos @LauredeMontalem). 3/
Read 21 tweets
Let's remove barriers so that #PharmacyTechnicians in the UK can be trained to vaccinate, and support attainment of community immunity

Now's the time to produce a training programme & PSDs to support the delivery of this year's flu prevention plan

#vaccines #InfectionPrevention
We need to adopt QI methodology to address this #publichealth concern

The drivers are clear - this is about ⬆️ #patientsafety via #prevention

It should not be about inter-professional competition; there is enough work for everyone
It's important to #vaccinate as many people as possible to protect those who're vulnerable

Although UK flu activity levels were not high last year, impact on 2°care was high due to hospitlisation & ICU admissions

This year looks set to ⬆️ so let's be innovative w/ healthcare WF
Read 6 tweets
[THREAD] Un débat confisqué.
Alors que plus de 70% des français plébiscitent l'#homéopathie et que la campagne @HomeoMonChoix a recueilli plus d'un million de signatures pour sa pétition #Monhomeomonchoix, les patients ont bien du mal à se faire entendre des pouvoirs publics.
De nombreux médias, personnalités publiques et figures politiques se prononcent régulièrement sur la question du déremboursement de l'#homéopathie, mais les premiers concernés, les #patients, n'ont étrangement pas voix au chapitre.
Les experts se succèdent sur les plateaux, no #fakemed en tête, mais pas ou très peu de témoignages de celles et ceux qui, chaque jour lui font confiance : les femmes enceintes, les jeunes parents, les sportifs ou les personnes âgées.
Read 5 tweets
1/ #medtwitter #twitternists #proudtobeGIM

I've been sitting on a @SocietyGIM #sgim19 debrief #medthread since the meeting, and thought I might finally take a swing at it - here goes ..

I am considering whether I can do more division/systems leadership in coming years .. ->
2/ Theme of the conference was 'Courage to Lead', and single best workshop for me was :

Leading Change: Tools/Tips for Change Management

Crediting Alfred Burger, Emily Fondahn, Brent Petty, Nathan Spell, Dan Steinberg - can't find them on Twitter, so giving proper 🗣🗣.
3/ would like to share key concepts for all of us trying to lead in academic medicine or in #advocacy spaces.

First key Slide/thoughts:

The hard stuff - barriers to change .. ->
Read 16 tweets
Read 7 tweets
@RichDuszak 1- MT @Aiims1742 “This @katekelly article reads like a paid infomercial for EPIC (in fact, I actually looked for the “This is an advertisement” disclaimer). Would have been nice to have interviewed one or two end users of the chocolate factory product.”
nytimes.com/2018/12/20/bus…
@RichDuszak @Aiims1742 @katekelly 2- Nice digs, clever marketing spin, BUT Epic highly disliked by users. #EHR has significantly disrupted relationships w #patients, #ptexp, led to clinician & pt dissatisfaction, & is seen as one cause of #burnout. @JackMurtha hcanews.com/news/ehrs-are-… @BarbaraMcAneny @meggerber
Read 28 tweets
@Aiims1742 @katekelly Nice digs, clever marketing spin, but EPIC is highly disliked by end users. #EHR has significantly disrupted relationships with #patients, led to clinician & pt dissatisfaction, & is seen as one cause of #burnout. @choo_ek @darakass @tgoetz @tmprowell @cardiobrief @DrMJoyner
@Aiims1742 @katekelly @choo_ek @darakass @tgoetz @tmprowell @cardiobrief @DrMJoyner @GregT_156 @rgergelymd @matthewherper @charlesornstein @ddiamond @JeffYoung @sarahkliff @adamfeuerstein @dariustahir @ReasObBob @EJSMD “I began to see the insidious ways the software changed how people work together. They’d become more disconnected; less likely 2 see & help one another, & often less able to”–@Atul_Gawande newyorker.com/magazine/2018/… @GavinPrestonMD @agropper @joyclee @LaurentLantieri #EHR @BobLeeMD
Read 11 tweets
Apple has a section of their website answering questions doctors may have regarding their latest #ECG technology. Where are the answers to the REAL questions #patients want to know about? For example, if I get an alert:

#AppleWatch #digitaltech #wearables #PatientAdvocacy
2) when do I confidently ignore, act upon, or wait to make actionable decisions about alerts I’ve received? #AppleWatch #digitaltech #digitalhealth #wearables #Innovation #PatientAdvocacy #healthcare #medtwitter
Read 7 tweets

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