Discover and read the best of Twitter Threads about #patients

Most recents (18)

1) So you get a copy of your medical records & dive in, reading line by line, trying to make sense of your new lung #cancer diagnosis.

“Wait a second, this doesn’t sound right. This is a mistake. I don’t have a history of a heart condition & I don’t smoke cigarettes.
#PtExp
2) You call your oncologist’s office to report the mistakes you found & ask to have it updated. You are told to write down the correction & fax it to the office. You do exactly that.
#PtExp #addendum #EHR
3) At your next follow up appt a month later, you ask the dr if your record was updated & the correction was made.

The dr looks at you like:

#PtExp #addendum #EHR
Read 16 tweets
So @ANZUPtrials #ENZAMEt #PCSM results fro #HRQOL were presented today at #ESMO19, here are some of the headline outcomes 1/5 #InternationalCollaboration #RCT
@ANZUPtrials Acknowledgements usually come last but we can't do these studies without #patients. So our very sincere thanks to the 1125 men living with mHRPC #PCSM who volunteered to take part, have the treatment, & fill out #HRQOL questionnaires! #ENZAMET @anzupartners #ESMO19 2/5
@ANZUPtrials @anzupartners In the @ANZUPTrials #ENZAMET study we measured #HRQOL using @EORTC_QLG's #QLQC30 (global qol, social, physical, emotional, functional domains) & Prostate Cancer module #PR25 at weeks 0, 4, 12, then 12-weekly until clinical progression #PCSM #ESMO19 3/5
Read 7 tweets
22. United States decided to label #IRGC terrorists. But who are the real terrorists? Who created, trained, armed & financed the worst terrorist groups in the world?

#Hypocrites #DoubleStandards #Liars #Warlords #USRealTerrorists
1 to 20. United States decided to label #IRGC terrorists. But who are the real terrorists? Who created, trained, armed & financed the worst terrorist groups in the world? 🤨👇🏼
threadreaderapp.com/thread/1166502…
21. United States decided to label #IRGC terrorists. But who are the real terrorists? Who created, trained, armed & financed the worst terrorist groups in the world? 🤨👇🏼
threadreaderapp.com/thread/1170740…
Read 90 tweets
Petit thread pour vous expliquer mon quotidien de #patient en #dialyseàdomicile.
Je dialyse 4 fois: lundi/mercredi/vendredi/dimanche.
Je dois bien sûr gérer ma #dialyse ces 4 jours, mais pas que ! 1/
Je dois également gérer l’osmoseur qui permet de purifier l’eau de ville car elle n’est pas assez pure pour la dialyse.
Concrètement, je dois changer des filtres tous les mois et régénérer en sel toute les semaines.
Je dois également faire 2 tests avant chaque dialyse. 2/
30 minutes avant de dialyser, je dois préparer ma machine en montant le circuit, paramétrer la machine, préparer mon champ de dialyse. Qd mon mari est là, je me pique et je me branche. (Photos @LauredeMontalem). 3/
Read 21 tweets
Let's remove barriers so that #PharmacyTechnicians in the UK can be trained to vaccinate, and support attainment of community immunity

Now's the time to produce a training programme & PSDs to support the delivery of this year's flu prevention plan

#vaccines #InfectionPrevention
We need to adopt QI methodology to address this #publichealth concern

The drivers are clear - this is about ⬆️ #patientsafety via #prevention

It should not be about inter-professional competition; there is enough work for everyone
It's important to #vaccinate as many people as possible to protect those who're vulnerable

Although UK flu activity levels were not high last year, impact on 2°care was high due to hospitlisation & ICU admissions

This year looks set to ⬆️ so let's be innovative w/ healthcare WF
Read 6 tweets
[THREAD] Un débat confisqué.
Alors que plus de 70% des français plébiscitent l'#homéopathie et que la campagne @HomeoMonChoix a recueilli plus d'un million de signatures pour sa pétition #Monhomeomonchoix, les patients ont bien du mal à se faire entendre des pouvoirs publics.
De nombreux médias, personnalités publiques et figures politiques se prononcent régulièrement sur la question du déremboursement de l'#homéopathie, mais les premiers concernés, les #patients, n'ont étrangement pas voix au chapitre.
Les experts se succèdent sur les plateaux, no #fakemed en tête, mais pas ou très peu de témoignages de celles et ceux qui, chaque jour lui font confiance : les femmes enceintes, les jeunes parents, les sportifs ou les personnes âgées.
Read 5 tweets
1/ #medtwitter #twitternists #proudtobeGIM

I've been sitting on a @SocietyGIM #sgim19 debrief #medthread since the meeting, and thought I might finally take a swing at it - here goes ..

I am considering whether I can do more division/systems leadership in coming years .. ->
2/ Theme of the conference was 'Courage to Lead', and single best workshop for me was :

Leading Change: Tools/Tips for Change Management

Crediting Alfred Burger, Emily Fondahn, Brent Petty, Nathan Spell, Dan Steinberg - can't find them on Twitter, so giving proper 🗣🗣.
3/ would like to share key concepts for all of us trying to lead in academic medicine or in #advocacy spaces.

First key Slide/thoughts:

The hard stuff - barriers to change .. ->
Read 16 tweets
Read 7 tweets
@RichDuszak 1- MT @Aiims1742 “This @katekelly article reads like a paid infomercial for EPIC (in fact, I actually looked for the “This is an advertisement” disclaimer). Would have been nice to have interviewed one or two end users of the chocolate factory product.”
nytimes.com/2018/12/20/bus…
@RichDuszak @Aiims1742 @katekelly 2- Nice digs, clever marketing spin, BUT Epic highly disliked by users. #EHR has significantly disrupted relationships w #patients, #ptexp, led to clinician & pt dissatisfaction, & is seen as one cause of #burnout. @JackMurtha hcanews.com/news/ehrs-are-… @BarbaraMcAneny @meggerber
Read 28 tweets
@Aiims1742 @katekelly Nice digs, clever marketing spin, but EPIC is highly disliked by end users. #EHR has significantly disrupted relationships with #patients, led to clinician & pt dissatisfaction, & is seen as one cause of #burnout. @choo_ek @darakass @tgoetz @tmprowell @cardiobrief @DrMJoyner
@Aiims1742 @katekelly @choo_ek @darakass @tgoetz @tmprowell @cardiobrief @DrMJoyner @GregT_156 @rgergelymd @matthewherper @charlesornstein @ddiamond @JeffYoung @sarahkliff @adamfeuerstein @dariustahir @ReasObBob @EJSMD “I began to see the insidious ways the software changed how people work together. They’d become more disconnected; less likely 2 see & help one another, & often less able to”–@Atul_Gawande newyorker.com/magazine/2018/… @GavinPrestonMD @agropper @joyclee @LaurentLantieri #EHR @BobLeeMD
Read 11 tweets
Apple has a section of their website answering questions doctors may have regarding their latest #ECG technology. Where are the answers to the REAL questions #patients want to know about? For example, if I get an alert:

#AppleWatch #digitaltech #wearables #PatientAdvocacy
2) when do I confidently ignore, act upon, or wait to make actionable decisions about alerts I’ve received? #AppleWatch #digitaltech #digitalhealth #wearables #Innovation #PatientAdvocacy #healthcare #medtwitter
Read 7 tweets
Physical Activity and Exercise –––– Their massive role in our health and wellness, at ALL ages/ stages of life.

A #curatedthread with tips and resources ––

Tags: #PhysicalActivity #Exercise #PhysicalMobility #SixthVitalSign #HealthyAging #health #wellness
More –– #PhysicalActivity #Exercise #PhysicalMobility
Tips on Getting Started
m.gulfnews.com/news/europe/uk…
- Craft your 'why'/purpose
- Start slowly
- U may 'love' exercising OR Not
- Be kind to U
- Use 'why'& habit, Not willpower
- Plan,Prioritize
- Be flexible
-+Resistance, +Balance
More ––––#PhysicalActivity #Exercise #PhysicalMobility #SixthVitalSign

"Common Sense Guide To Exercise and Moving More!" ––– by @CorKinetic

20 Great Tips! 👇
Read 52 tweets
#Disability twitter, #medtwitter , let us have a discussion about patients discussing #MedicalTrauma on here. A Thread:
#chronicillness #ChronicPain #Chroniclife #MedTraumaChat #Spoonie
2) Last night, a fellow advocate posted a very handy guide for HCPs & patients abt treating patients who are trauma survivors: Trauma Informed Care - Disclosures and Care Transitions healthasahumanright.wordpress.com/2018/08/23/tra… #medtwitter #Disability #chronicillness #medtraumachat #spoonie
3) It's a good resource for both #patients & HCPs, please read it if you have a moment.
This led to a helpful discussion about #MedicalTrauma between an HPC and the person who wrote this guide, who has had experiences with this,
#Disability #medtwitter #chronicillness #Spoonie
Read 13 tweets
Dear #hospitals:

Your discharge planning sets #patients up for failure. How? Let me explain (again, & again, & again). #PtExp #PtSafety #PtEng #EHR #interoperability #PatientAdvocacy #medtwitter #GMDD #hcldr

Photo Credit: Rob Potter (Unsplash)
1)Follow up appts, essential to a patient’s health & recovery, are listed as part of the discharge summary. These appts are recommended to be scheduled within 7-10 days. To be best prepared, patients need their records. #healthcare #PtExp #PtSafety #PtEng #EHR #GMDD #medtwitter
2)All records from a patient's hospital admission should be AUTOMATICALLY sent to every listed follow-up physician. Hospitals, you know which drs patients need to see; it’s listed in the discharge plans. This step needs to be embedded in the workflow #PtExp #EHR #interoperability
Read 14 tweets
1/n
Dear naturopaths,

You seem to have no idea how much trouble you cause for patients, MDs, & society in general. This trouble is getting worse, & it has to STOP. Since you seem to have no insight into these issues, here are some of the (many) problems you create for us all...
2/n
Naturopaths, STOP making patients think they NEED lab tests from MDs! If we disagree, it can compromise our relationship with our patients by making them think they’re being denied something you just told them they HAD to have! You are SETTING US UP for a conflict with them!
3/n
It takes a LOT of time for MDs to explain why MANY (nearly all) of the tests naturopaths are often demanding SHOULD'NT be done! This re-education, takes AWAY time spent effectively on that #patients actual health issues. This isn't helping their care! This COMPROMISES it!!
Read 12 tweets
A J-14 du #hackinghealth, quels défi de #santé allez-vous relever ? Passage en revue de notre sparkboard 2017 :
Familien - comment mieux accompagner les familles lors d'une #hospitalisation ? hhlyon2017.sparkboard.com/project/59ba78…
Un outil numérique serait-il pertinent pour maintenir le lien entre enfant et patient même si les visites sont impossibles ou rares ?
Read 93 tweets
En un thread on va vous convaincre de choisir ce #workshop à Rhône 1 au #BlendWebMix demain 11h :
D'abord, vous le savez : la #santé est un domaine porteur. Et on ne parle pas seulement des #feelgood books
1% des milliards de requêtes quotidiennes sur Google comportent un symptôme médical 1001startups.fr/startup-tendan…
Read 30 tweets
Pourquoi vous pouvez accompagner votre grand-mère au #HHCafe de jeudi à @lacitedudesign [mini #thread]
D'abord parce qu'il sera animé par Alexandre Pennaneac'h de @CiteLupi qui vous initiera au #brainstorming
Ensuite parce qu'on parlera d'un sujet qui nous menace de plus en plus : #arthrose
Read 13 tweets

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