Discover and read the best of Twitter Threads about #postvacsyndrome
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Saw Dr Claire Taylor today at her private clinic. Shes taking a break from twitter atm but i just want to say it was a fantastic appointment. She was open to my ideas, explained where she disagreed & why, & prescribed some meds i think will really help
#postvacsyndrome #LongCovid
#postvacsyndrome #LongCovid
We also have a plan to identify whether longer term anticoagulation is warranted, based on the DASH score and antiphospholipid syndrome testing. This does mean coming off apixaban for 1 month which obvs worries me
I felt very supported as a patient. Money well spent!
I felt very supported as a patient. Money well spent!
Because im quite stable atm, im not going to start or stop any meds until after xmas.
Very grateful shes opened her clinic and if youve hit a brick wall with treatment for #LongCovid and related problems, id highly recommend!
#MCAS #pots #MECFS
Very grateful shes opened her clinic and if youve hit a brick wall with treatment for #LongCovid and related problems, id highly recommend!
#MCAS #pots #MECFS
What evidence have we got for vaccine induced #longcovid like presentations?
A thread 🧵 (focused on human evidence rather than theoretical or mechanistic)
#PostVac #teamclots #vaccineinjuries
A thread 🧵 (focused on human evidence rather than theoretical or mechanistic)
#PostVac #teamclots #vaccineinjuries
I will start by saying the *published* evidence is limited. Therefore going off published evidence alone is (by definition) incomplete (same for any research: the active researchers have a knowledge advantage)
1. This was first reported in the mainstream in Jan 2022 by Science mag:
science.org/content/articl…
Importantly, there are a handful of such cases in the trials that were excluded from final analysis, one is described in the Science article
science.org/content/articl…
Importantly, there are a handful of such cases in the trials that were excluded from final analysis, one is described in the Science article
Its my 20 month vaccine anniversary today.
I now take: ketotifen, sodium, statins, anticoagulants, antiplatelets, H1 and H2 antihistamines, plus vits/mins to address deficiencies and high needs, and some supplements
I still feel like crap
#postvacsyndrome #LongCovid
I now take: ketotifen, sodium, statins, anticoagulants, antiplatelets, H1 and H2 antihistamines, plus vits/mins to address deficiencies and high needs, and some supplements
I still feel like crap
#postvacsyndrome #LongCovid
These meds address:
😞Mast cell activation syndrome
😞My inability to produce aldosterone (endocrine dysfunction)
😞Endothelial damage
😞Clotting
😞Platelet activation
😞Unexplained hyperhomocysteinaemia (i.e. no MTHFR variant)
😞Mast cell activation syndrome
😞My inability to produce aldosterone (endocrine dysfunction)
😞Endothelial damage
😞Clotting
😞Platelet activation
😞Unexplained hyperhomocysteinaemia (i.e. no MTHFR variant)
Luckily for me, people believe me. But some only seem to believe me because I agree with them about other things, because i take issue with the same people they take issue with, because i havent gone on media they dislike
And that is a HUGE bias we need to overcome
And that is a HUGE bias we need to overcome
Es gibt hier in der Bubble Unklarheit darüber, was psychosomatische Krankheit eigentlich ist.
Daher ein Faden. 🧵
[Einschränkung: Ich beziehe mich hier vor allem auf den Teil der Psychosomatik, der sich mit sog. „funktionellen Körperbeschwerden“ beschäftigt.]
Daher ein Faden. 🧵
[Einschränkung: Ich beziehe mich hier vor allem auf den Teil der Psychosomatik, der sich mit sog. „funktionellen Körperbeschwerden“ beschäftigt.]
Was denkt man, wenn man das Wort „Psychosomatik“ hört? Man hat sofort die Assoziation, dass die Seele krank macht, oder? Logisch und plausibel. Jeder weiß dass Psyche und Körper nicht getrennt zu betrachten sind.
Aber jetzt kommt’s: Warum gilt dann das Ausbrechen einer schweren Erkrankung nach einem belastenden Lebensereignis nicht als psychosomatisches Problem?
Das liegt daran, dass die Lehre der Psychosomatik ganz andere Konzepte hat, als man dem Namen nach vermuten würde.
Das liegt daran, dass die Lehre der Psychosomatik ganz andere Konzepte hat, als man dem Namen nach vermuten würde.
Ich arbeite für ein junges aufstrebendes IT-Unternehmen.
Leider bin seit 42 Tagen krank geschrieben, stehe dem Unternehmen nicht mehr zur Verfügung und falle ab heute der DAK zur Last.
Auslöser war bei mir die Covid-Schutzimpfung. Die Symptome traten erst einige... 1/6 🧵
Leider bin seit 42 Tagen krank geschrieben, stehe dem Unternehmen nicht mehr zur Verfügung und falle ab heute der DAK zur Last.
Auslöser war bei mir die Covid-Schutzimpfung. Die Symptome traten erst einige... 1/6 🧵
... Tage nach der Impfung auf. Es brauchte erste den Booster, um zu verstehen, dass ich unter dem #PostVacSyndrome leide.
Nach sechs Monaten ging es mir besser und ich hatte das Gefühl, wieder Bäume ausreißen zu können.
Dieses Gefühl wurde von einem Crash abgelöst... 2/6🧵
Nach sechs Monaten ging es mir besser und ich hatte das Gefühl, wieder Bäume ausreißen zu können.
Dieses Gefühl wurde von einem Crash abgelöst... 2/6🧵
Es folgt ein wichtiger Thread zu #laborwerten bei #LongCovid
Es erreichen mich immer wieder auffällige Laborbefunde wie dieser! Liebe #ärzte, ein sehr auffälliger #biomarker ist oft die #dysregulation des Immunsystems was sich im #th1th2shift zeigt! 🧵
Es erreichen mich immer wieder auffällige Laborbefunde wie dieser! Liebe #ärzte, ein sehr auffälliger #biomarker ist oft die #dysregulation des Immunsystems was sich im #th1th2shift zeigt! 🧵
Natürlich ist dies KEINE Kassenleistung und mal wieder von Betroffenen selbst zu zahlen!! Diese Auffälligkeiten sind also NICHT Teil eines klassischen Blutbildes! Bitte weist die Patienten auf diese Werte hin 🙏🙏🙏
Ich selbst habe unzählige Telefonate mit #laboren geführt und sie zum #vegf im Falle bei #longcovid informiert! Ebenso wie der #Rantes-Wert (auch unter CCL5 bekannt), steht dieser für eine #endothelentzündung! Andere Immunzellen werden durch dieses Zytokin alarmiert!
Many #PostVacSyndrome patients stayed silent for quite some time (~9 months in my case)
We stayed silent because we didnt what to spread vaccine hesitancy
We didnt know we were not the only ones
How did this pan out? 🧵
#vaccineinjuries
We stayed silent because we didnt what to spread vaccine hesitancy
We didnt know we were not the only ones
How did this pan out? 🧵
#vaccineinjuries
Many spent months feeling isolated, everyone else getting vaccines seemingly with no problems (sometimes because they werent talking about side effects either), feeling like there is something uniquely wrong with themselves
Doctors who meet their first post vac syndrome patient had no knowledge that possibly their other patients are suffering similar. Thus repeatedly we hear "its rare", and theres nothing that could help
Cause matters when discussing illness.
Understanding the cause can help direct what tests to do, what treatments to have, and in some cases improve safety for products or pharmaceuticals
Context is essential for clinicians to help effectively
Understanding the cause can help direct what tests to do, what treatments to have, and in some cases improve safety for products or pharmaceuticals
Context is essential for clinicians to help effectively
Some examples:
Having flu like symptoms can be from infection or drug withdrawal
Tremor can be a sign of neurodegenerative diseases like MS or a head injury
A rash can be from allergies to washing detergent or infection
Having flu like symptoms can be from infection or drug withdrawal
Tremor can be a sign of neurodegenerative diseases like MS or a head injury
A rash can be from allergies to washing detergent or infection
It would be absurd to go to your healthcare provider & not mention youve been exposed to an infectious person, are withdrawing from drugs, had a recent head injury, or you notice a trend when you use different detergent
These add essential context & clues as to tests & treatment
These add essential context & clues as to tests & treatment
#Longcovid #PostVacSyndrome #Gehirn #Impfung
1/n Das SPIKE Protein alleine (!) führt im Experiment zu einer dramatischen Störung in spez. Zellen innerhalb des Gehirns (sog. „Mikroglia“, quasi Bindeglied zw. Gehirnzellen & Immunsystem). Was bedeutet das für Covid-Impfstoffe?🧵👇🏻
1/n Das SPIKE Protein alleine (!) führt im Experiment zu einer dramatischen Störung in spez. Zellen innerhalb des Gehirns (sog. „Mikroglia“, quasi Bindeglied zw. Gehirnzellen & Immunsystem). Was bedeutet das für Covid-Impfstoffe?🧵👇🏻
2/n Wir wissen inzw., dass die mRNA-Impfstoffe nicht nur lokal im Muskel bleiben, sondern mind. 2 Wochen im Blut nachweisbar sind und hierüber in andere Organe „schwimmen“ können:
mdpi.com/2227-9059/10/7…
mdpi.com/2227-9059/10/7…
3/n Aus japanischen Biodistributionsstudien wissen wir, dass die Lipidnanopartiklel mit ihrer mRNA so z.B. in kleinen Mengen auch im Gehirn landen. Dort kann die mRNA von Zellen aufgenommen werden und theoretisch auch dort Spike-Protein herstellen.
docdroid.net/xq0Z8B0/pfizer…
docdroid.net/xq0Z8B0/pfizer…
am starting to prepare the data from our #vaccineinjuries #PostVacSyndrome survey for analysis today
just having a look at the raw data output and this stands out. most participants report no health problem that affected their day-to-day living prior to the offending vaccine
just having a look at the raw data output and this stands out. most participants report no health problem that affected their day-to-day living prior to the offending vaccine
after the offending vax general health was reduced to being very poor
even those who had no indication something could go wrong, who led completely unrestricted lives, had their world turned upside down after vaccination
even those who had no indication something could go wrong, who led completely unrestricted lives, had their world turned upside down after vaccination
many already chronically ill folk seem to have on their mind that they might react badly (and there was a distinct lack of chronic illness patients in trials), and indeed it seems ME and long COVID patients have a high prevalence of severe reactions (maybe around 20 %).
My mean platelet volume has been elevated and was BEFORE the vaccine. This study suggests it may link to thrombosis and inflammation
ingentaconnect.com/content/ben/cp…
Maybe a predisposing factor to #PostVacSyndrome #vaccineinjuries #LongCovid?
#TeamClots
ingentaconnect.com/content/ben/cp…
Maybe a predisposing factor to #PostVacSyndrome #vaccineinjuries #LongCovid?
#TeamClots
High MPV can be caused by #VitaminD deficiency, which i had BEFORE my vaccine (measured historical sample), and is now rectified.
My MPV remains elevated still. Maybe vit D initially triggered it, now the damage is hard to fix?
Maybe something else driving high MPV? 🤔
My MPV remains elevated still. Maybe vit D initially triggered it, now the damage is hard to fix?
Maybe something else driving high MPV? 🤔
Super activated platelets have to die: sciencedaily.com/releases/2016/…
Could this mean hyperactivated platelets = shorter cell life = more young platelets = higher MPV?
#LongCovid #postvacsyndrome #TeamClots #microclots
Spitballing here, have about 20 papers to read on MPV already 😆
Could this mean hyperactivated platelets = shorter cell life = more young platelets = higher MPV?
#LongCovid #postvacsyndrome #TeamClots #microclots
Spitballing here, have about 20 papers to read on MPV already 😆
I´m #vaxinjured.
I´m a scientist working in the pharm. industry.
In 2020 I was very excited about the announcement that mRNA technology is ready to be used as vax – finally! I knew that there were benefits, I knew that there were risks.
🧵
(1/n)
I´m a scientist working in the pharm. industry.
In 2020 I was very excited about the announcement that mRNA technology is ready to be used as vax – finally! I knew that there were benefits, I knew that there were risks.
🧵
(1/n)
I went for my 1. jab of #pfizer & got heart inflammation incl. further symptoms #postvaxsyndrome. I could only move from bed to desk for 3 months. I live in the 3. floor & couldn´t leave the house anymore. I was lucky to be able to work remote. I was lucky to have a partner (2/n)
..who took over everything else. ❤️ Not everyone else is so lucky. I struggled about discussions on a 2. jab & vax mandates.
Since none of my docs had an idea what has happened I tried to do some research on my own. I met other vax injured in social media. They started ... (3/n)
Since none of my docs had an idea what has happened I tried to do some research on my own. I met other vax injured in social media. They started ... (3/n)
