Discover and read the best of Twitter Threads about #postviral

Most recents (5)

1/I often wonder myself: would it be different if the majority of seriously ill people, post covid would be men in the midst of their careers? Would there be more research? Would an alarm have gone off? #misogynie #longcovid #postviral
2/Long covid targets more often women then men. Young women, middle aged women, active women, working women, mothers, busy bees.
It seems our society still believes it is OK to send women home, ill, chronically ill with no solutions in sight.
3/What if they were men? What if they were scientists, politicians, or even just ‘know it all nobodies with medical titles’ on Twitter? What if they would be the target of this disease?
Wouldn’t politics, science and medical establishment have taken things more serious?
Read 8 tweets
PHASE 1 LAUNCH! New study reveals yawning gap in medical care for energy-impaired

#pwME #NEISvoid #FBLC #LongCovidWork #LongCovidCosts #TreatLongCovid #CountLongCovid #miilionsmissing #HealthEquity #patientled #medtwitter #wellless

A THREAD > Image shows 'energy' used for patient activities on a graph
Long-Covid visual report quantifies money, time, work and energy spent on the battle to get medical care, and introduces new language of the “well-less” to improve patient awareness and support.
@long_covid @longcovidwork @actionforme @chronicinclude #EDS #PoTS #postviral Image shows a new healthcare spectrum from Well[ness] throug
I tracked and analysed my own health interactions from 2020 across nine different self-data sources, including @BupaUK @Bupa , @LloydsBank , @timspector (Zoe Covid Symptom Tracking App(, email, SMS, mobile and calendar data #Datavisualization #selfanalytics #dataviz
Read 25 tweets
Re @bmj_latest article last week ‘moving beyond controversy’ #LongCovid & #MECFS
Article that imho largely added to & repeated controversy & ignored much recent research
For which I was interviewed & quoted

There r things I REALLY need to make clear
I didnt see or review article prior to publication, I solely approved my quote.
During the lengthy interview, on ‘the debate over exercise & what should be happening’ I shared up to date referenced evidence of science behind PEM, potential harms of GET, debunking of PACE
Rather than respond myself, I highly recommend reading responses to the article, inc @DianeOLeary @DecodeMEstudy @MEResearchUK Dr Shepherd @MEAssociation

Though I was glad of opportunity to warn of dangers of PEM, for full thoughts pls see this video
Read 6 tweets
1/6 "Ce n’est que quand ma médecin de famille a assisté à une conférence sur la #COVID longue durée par le physiothérapeute @SimonDecary (...) qu’elle s’est rendue compte de par les rechutes que je faisais après des efforts que j’avais une mononucléose longue !"

2/6 Quelques précisions :
Selon les sources, le nombre de malades en 🇫🇷 est plutôt de 150  à 500 000....

Nous utilisons le terme #EM dans lequel le #MalaisePostEffort est un critère obligatoire tandis que le SFC est fourre-tout, incluant les troubles "somatoformes" :
3/6 Voici ce qu'entraîne la nomination SFC :
« Je me souviens vaguement d’avoir lu une vignette clinique sur le SFC durant mes études de médecine, mais je n’en ai seulement retenu que ça semblait très psychosomatique. J’avais donc moi aussi ce préjugé-là".
Read 6 tweets
There IS good advice available to help with #LongCovid
#postviral #ME fatigue symptoms
There r also Snake oil salesman & opportunists looking to make money from your ill health
I was asked to collate some resources & help
Free leaflets, including comprehensive summary of latest advice & guidance re rest/pace (see photo)
Also see their advice leaflet re activity management & pacing (£1)
(Royal college of Occupational therapists)
Info & details re The 3 Ps principle (Pace, Plan and Prioritise)
Learning to pace, plan and prioritise your daily activities will help you to save energy.
Read 9 tweets

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