Discover and read the best of Twitter Threads about #pseudonymisation
Most recents (3)
While the chaos of '#AcceleratedCitizensAccess' to #GPrecords continues to unfold:
...we've come across some perturbing items on the agenda for @NHSDigital's Board meeting this afternoon 👇 which I'll pick up on in this [Thread].
nhs-prod.global.ssl.fastly.net/binaries/conte…
...we've come across some perturbing items on the agenda for @NHSDigital's Board meeting this afternoon 👇 which I'll pick up on in this [Thread].
nhs-prod.global.ssl.fastly.net/binaries/conte…
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals...
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?
And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController...
And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController...
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts...
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
So, @MattHancock, rather than dribbling out info months after the fact will you please get @DHSCgovuk & @NHSEngland to publish a list of ALL #COVID-related projects, related contracts & data access RIGHT NOW.
Also, it doesn't bode well that you're misrepresenting genuine research!
@OpenSafely doesn't work on the #DataStore, it sits on #TPP's servers - which you'd know if you had the first clue or bothered to read its homepage: opensafely.org
@OpenSafely doesn't work on the #DataStore, it sits on #TPP's servers - which you'd know if you had the first clue or bothered to read its homepage: opensafely.org
And BTW, no-one's buying your transparent shilling for @faculty_ai:
Its "new cutting-edge predictive technology" was no help in the first wave - 'cos no overwhelm - but you gotta announce SOMETHING now, to justify paying Marc Warner & co. even more...
Its "new cutting-edge predictive technology" was no help in the first wave - 'cos no overwhelm - but you gotta announce SOMETHING now, to justify paying Marc Warner & co. even more...
