Discover and read the best of Twitter Threads about #pwms

Most recents (2)

Sometimes Positive. Feeling Unique:Disabled Nurse with 35 years in all areas of Healthcare. Neuro my favorite way before diagnosis. My Doctor a respected coworker. I endeavored to make life better for #pwMS, Care Team, Researchers, Loved ones, started blog
Sometimes Bad, er, “negative”. Yin & Yang. Can’t have one w/o the other. The World goes around. Friends & Family die of diseases I hope I don’t get. #MultipleSclerosis is a “dreaded” diagnosis. Revealing responses vary from Speechless German is better: Sprachlos-Absence of Speech
Bad: no cure, too many treatments to choose from. What were You offered today?
Did You see that commercial for the once a day pill 💊 that has You going to a picnic after the 10k 🏃‍♀️?
No, Mom 🤦‍♀️
Good: In early 1980’s I worked Neuro and all we had was High Dose steroids x5 days
Read 6 tweets
Education is a big part. Empathy doesn’t hurt. I think #pwMS are wise to share among themselves: symptoms, pitfalls, what helps/harms, treatment, diagnosis, assessment. Non #MultipleSclerosis People who Love You cannot understand what You go Through. Try to give them good info 💚
I would point them to website/twitter for @shiftms @mssociety @GavinGiovannoni @Brandon_Beaber @AaronBosterMD @drbarrysinger No reason to reinvent the wheel, so much information here. Fear is based partly in Not knowing What to Expect. Lay out a solid plan with detours possible.
Bumps in the Road shouldn’t be a sign of Failure, but a Detour. Don’t ever beat Yourself up. Don’t waste breath on loved one who can’t hear you. They can go into denial/depression too. It’s important for them to Know-it’s Normal. Sucks but that’s the MonSter I’m referring to 🐉
Read 5 tweets

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