Discover and read the best of Twitter Threads about #rarediseaseday2021

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Many of you don't know I am a caregiver to our son. He has had a lot of struggles in his life. We didn't know why. A few years ago when he was 29 he was in and out of the hospital for about 6 months. He was having a horrible bout of psychosis. That he never had
#RareDiseaseDay
before. I kept begging for them to do an MRI. They kept refusing. I knew it had to be something with the brain. I also suggested a functional MRI. They refused that also. The decided on electrical convulsive therapy or ECT. I said I would only give them permission ig they did an
MRI first and not until. They asked my son's permission who was in no state to even give permission. I am his legal guardian. So they did the MRI. They told me they did a ct scan on him and it was fine. They did the ECT the next morning. They ended up doing 5-6 total. I told
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