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This paper makes so much sense. Especially in the context of US with ECMO & other aggressive treatments raising costs in high CDH volume hospitals.

Medical and other costs.

#CDH #CongenitalDiaphragmaticHernia

pubmed.ncbi.nlm.nih.gov/35030432/
1 of the biggest costs is the loss of workdays. From the office which usually pays for the #MedicalInsurance So often the course of treatment changes mid course due to insurance conditionalities.
The other major cost for the family is being away from home, from other kids who might be at home and arranging some form of childcare for them. This impacts the working of the other partner/ spouse as well.
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