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ICYMI this thread on Natalie Harp from last night.
@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
Harp said she has essential thrombocytosis, which is not life-threatening. She also said she was prescribed an #FDA-approved immunotherapy off-label - a common practice & not #RightToTry.
#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.
Why?
#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.
Why?
Harp likes to describe her condition - essential thrombocytosis - as "bone cancer."
But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.
Period.
But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.
Period.
The fact #GOPConvention can't find a real patient to talk about #RightToTry says a lot about that 2018 law.
Why is GOP relying on someone who has repeatedly told the same false/misleading story? The condition she claims she has is not life-threatening. The drug is #FDA-approved.
Why is GOP relying on someone who has repeatedly told the same false/misleading story? The condition she claims she has is not life-threatening. The drug is #FDA-approved.
Reminder: Natalie Harp has repeatedly told a false #RightToTry story.
Condition she claims she has - essential thrombocytosis - isn't life-threatening & doesn't qualify for #RTT.
She also said used #FDA-approved immunotherapy off-label, a common practice, not RTT
#GOPConvention
Condition she claims she has - essential thrombocytosis - isn't life-threatening & doesn't qualify for #RTT.
She also said used #FDA-approved immunotherapy off-label, a common practice, not RTT
#GOPConvention
Why is #GOPConvention using someone who tells a false/misleading story to promote #RightToTry?
Apparently, they don't have any real #RTT patients to share their experiences.
Apparently, they don't have any real #RTT patients to share their experiences.
The story Harp has been telling & will tell tonight is false.
For #GOPConvention to be selling it as Trump "allowed her to have access to the #RightToTry legislation" & that it saved her life is false/misleading.
Harp's condition & drug she said she used don't qualify for #RTT
For #GOPConvention to be selling it as Trump "allowed her to have access to the #RightToTry legislation" & that it saved her life is false/misleading.
Harp's condition & drug she said she used don't qualify for #RTT
Aside from Harp again repeating her false #RightToTry story, how will Republicans also sell Trump's #COVID19 response tonight at #GOPConvention as a positive when 177,000 Americans are dead from the virus & over 5.7 million in the U.S. have been infected?
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gisanddata.maps.arcgis.com/apps/opsdashbo…
.@AP-NORC poll: Trump faces pessimism as GOP convention opens apnews.com/a464966595a326… #GOPConvention
