Discover and read the best of Twitter Threads about #s4pm
Most recents (5)
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd So much truth - IMO this flip to consumerism WITHOUT full participation of both clinical experts and patient community leaders in creating health literacy resources for humans is root cause of much "I did my own research" nonsense now driving medical misinformation online.
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd What I mean by that is "the academy" (in this instance the @AmerMedicalAssn who I give fish-eye to on the regular over their K St lobbying in service of status quo in US healthcare spend, but I digress) has missed eleventy-million-and-five opportunities to ... /2
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn Team up with patient community leaders savvy in comms, community organizing, and *science* to build health literacy resources that can be deployed all over ever'where to help humans be prepared to made decisions about their/their families' health. /3
Dear oncology: We wrote this paper for you & it was published in @Cancer_Cell.
>10 yrs of research shows pts benefit when they read their clinical notes (#opennotes) however oncologists have been resistant to the practice.
#medthread 🧵 #MedTwitter 1/9
cell.com/cancer-cell/fu…
>10 yrs of research shows pts benefit when they read their clinical notes (#opennotes) however oncologists have been resistant to the practice.
#medthread 🧵 #MedTwitter 1/9
cell.com/cancer-cell/fu…
- I've read every paper on #opennotes
- I've presented about open notes at @ASCO & @AACR
- I'm connected w/the cancer patient community
I noticed:
- Pts are positive about the idea of open notes
- Oncologists are nervous
#bcsm #btsm #lcsm #mmsm #ayacsm #CSSMchat
2/9
- I've presented about open notes at @ASCO & @AACR
- I'm connected w/the cancer patient community
I noticed:
- Pts are positive about the idea of open notes
- Oncologists are nervous
#bcsm #btsm #lcsm #mmsm #ayacsm #CSSMchat
2/9
My colleagues at @myopennotes have conducted studies of pts & clinicians with survey responses in the tens of thousands, but we had never dug into the oncology-specific data... UNTIL NOW.
QUESTION
How do oncology clinician views differ from those of their patients? 3/9
QUESTION
How do oncology clinician views differ from those of their patients? 3/9
Considering that every email I get from @statnews includes a "sponsored by @PhRMA" banner, seeing this does not surprise me. Nor does PhRMA's willingness to lie about their true purpose: shareholder value outstrips human life.
Also high on @PhRMA to-do list is making sure only T1Ds with $$, Hep-C patients ditto, and CF patients too. And let's not forget cancer patients, including children, who find themselves on the receiving end of shortages - yes @TevaUSA I'm looking at you - or straight up cut-offs.
Correction, only T1Ds w/$$ et al CAN ACCESS LIFESAVING MEDICATIONS.
@dmccallie @HealthPrivacy @rickybloomfield @CommonWell Oh, my dude. So "nope" on that. If provider-provider solutions were either (a) present or (b) possible as solutions, woulda happened by now. But we're still in the clutches of Capt. Click, were dropdown menus proliferate but actual data/work flows are frozen sludge /1
@dmccallie @HealthPrivacy @rickybloomfield @CommonWell Dirtiest of dirty secrets in this arena is that there's no money in interop. Duplicative processes, rabbit holes where handoffs should be, all in service of preserving ever'body's revenue flow. NO ONE wants to give up their slice of ... /2
@dmccallie @HealthPrivacy @rickybloomfield @CommonWell That almost-$4-trillion-with-a-T cash hose that continues to crush all sectors of the US economy. Outcomes suck, but shareholder value is LIT AF, FAM! It's head/desk all day long in patient-ville. And it's literally killing us. /3
You going to Health Datapalooza next month? YOU WANT TO, you do! It's never just a nerd herd, and this year you'll get #cyberwoke. Settle in, I'll spin the tale. #HDPalooza #epatient #datarights
First, you need to know that as awesome as social media is for #epatients, #research teams, #healthpolicy wonks, #datascience peeps, and other members of the #HDPalooza tribe, there IS a dark side. #cyberwoke #dataprivacy #HumanRights
