Discover and read the best of Twitter Threads about #saytheword

Most recents (8)

Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
“Special needs”... 6 times in under 60 seconds

“Take this burden off of the communities”...
I heard this last night.

My pain level was so high, I was wishing I had *safe* access to an emergency room where I wouldn’t be labeled as “drug-seeking” & discharged in worse condition. But I don’t, because chronic pain patients aren’t treated with respect or dignity.
So instead, I tried to watch the debate, as a distraction, in between pain so intense it was making me vomit and doing breathing exercises so I wouldn’t pass out.

I couldn’t watch the debate. The moving background made it inaccessible.
Read 25 tweets
#SoyDisca
El Movimiento de la Neurodiversidad es una rama del movimiento de derechos en discapacidad (Disability Rights Movement). Creo que separarnos de un movimiento tan importante porque nos quita mucho más de lo que supuestamente nos quita un "dis".
Diferentes somos todos, cada persona funciona diferente a la de al lado. Considero la diversidad una propiedad de los conjuntos y no de los individuos. Diversidad funcional a mí cognitivamente no me dice nada, no me describe y, en mi contexto, me puede restar acceso, apoyos.
No logro evitar ver capacitismo interiorizado y hasta supremacismo en las personas autistas que rechazan la discapacidad, en particular entre aquellas que sí ven otras personas y condiciones como discapacitadas. Yo no necesito ser arreglado como esas "otras personas"
Read 10 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
It's the incomparable @CJ_the_Actor!! 🙌 #UnitedShades #DeafTalent
My mom is scrambling to find her glasses right now so she can watch #UnitedShades...HILARIOUS
The disability community is not a monolith. There are worlds within worlds each w/ unique identities, languages, practices, and cultures.

We are part of every community.

There's no way to cover everything in a single episode of tv but it’s a start. #UnitedShades
Read 67 tweets
I never write threads. And so I hope my disabled friends and my supporters will take a moment to read this, as I am beginning to fall apart over things that keep happening. Advice and retweets would be much supported.
It started a year ago when @cooperhewitt asked me to consult on their Access + Ability exhibit. I jumped in without pause, as Disability Design is my passion.
In an early email I sought to "find incredible ways to incorporate the disability community, perhaps even create something the disability community can feel like they had a voice in."
Read 23 tweets

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