Discover and read the best of Twitter Threads about #severemeweek
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The strength it takes to live with #SevereME for decades defies understanding
Let alone when it begins in childhood, preemptively deleting the opportunities and joys of a normal life
Left having to fight for yourself in the midst of debilitating illness with little to no help
Let alone when it begins in childhood, preemptively deleting the opportunities and joys of a normal life
Left having to fight for yourself in the midst of debilitating illness with little to no help
And then most healthy people dare to say #severeME is fake/malingering or too much complaining, then to deny it or give BS advice?
Please, feel free to get in the shoes of a #pwME for a few years. The #millionsmissing have left plenty of them on the roadside for you to try.
Please, feel free to get in the shoes of a #pwME for a few years. The #millionsmissing have left plenty of them on the roadside for you to try.
On the #SevereME menu: at a bare minimum, a dozen symptoms that leave you bedbound 24/7
Unable to tolerate light, sound, touch, smells, to think, speak and move
Requiring assistance to eat, shower, use the toilet
The smallest thing you do flares your symptoms for days or weeks
Unable to tolerate light, sound, touch, smells, to think, speak and move
Requiring assistance to eat, shower, use the toilet
The smallest thing you do flares your symptoms for days or weeks
