Discover and read the best of Twitter Threads about #shinealightonlongcovid
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💈On the day the @ons report 26,000 CYP have symptoms for at least a year (⬆️ 3000 from last mth)
we received an email from @10DowningStreet in response to our visit on April 1st
It confirms the concerns of the children⬇️
"We feel ignored"
@FYI_SkyTV
we received an email from @10DowningStreet in response to our visit on April 1st
It confirms the concerns of the children⬇️
"We feel ignored"
@FYI_SkyTV
April 1st - 12 #children living with #LongCovid traveled
to #london to deliver their own letters documenting their #pain, loss of #sight, #mobility, organ damage, diagnosis of #PANS #MECFS #FND #POTS #MCAS and the detrimental impact it has had on their lives.
#LongCovidKids
to #london to deliver their own letters documenting their #pain, loss of #sight, #mobility, organ damage, diagnosis of #PANS #MECFS #FND #POTS #MCAS and the detrimental impact it has had on their lives.
#LongCovidKids
100+ page guide providing evidence-based information on #LongCovid in CYP from industry experts, research, and statistics from @GOVUK @ONS.
Did anyone read it?
We were assured @BorisJohnson would receive it.
#LongCovidKids
Did anyone read it?
We were assured @BorisJohnson would receive it.
#LongCovidKids
Have you seen the #LongCovidKids Padlets?
@padlet is an interactive website/app that provides a visual library of internet links that our team updates as new information emerges.
Think of it as a scrapbook of useful links
Since the start of the pandemic, we have been collating
@padlet is an interactive website/app that provides a visual library of internet links that our team updates as new information emerges.
Think of it as a scrapbook of useful links
Since the start of the pandemic, we have been collating
resources & info to help us improve recognition, support & recovery
We have five Padlets suitable for different audiences;
• Children bit.ly/3DbaR2d
#LongCovidKids #ShineALightOnLongCovid
@FYI_SkyTV @suepeters21 @tes @ihv @earlyyearsontap @LucindaNatDoc @PYL_London
We have five Padlets suitable for different audiences;
• Children bit.ly/3DbaR2d
#LongCovidKids #ShineALightOnLongCovid
@FYI_SkyTV @suepeters21 @tes @ihv @earlyyearsontap @LucindaNatDoc @PYL_London
Long Covid in children has been the elephant in the room for far too long. It's time we heard from the children: exhausting, painful, never-ending, lonely, scary... @LongCovidKids #ShineALightOnLongCovid #longcovid #childrensvoices #twittereps longcovidkids.org/post/exhaustin…
Children with Long Covid describe their pain and physical symptoms @LongCovidKids #LongCovid #childrensvoices #voiceofthechild #twittereps
Children with Long Covid describe their fatigue @LongCovidKids #LongCovid #childrensvoices #voiceofthechild #twittereps
These children have endured chronic and disabling symptoms.
Today they handed in their letters for @BorisJohnson to share their experience, hopes & ongoing infection risk fears.
#ShiningALightOnLongCovid #LongCovid #LongCovidKids
Today they handed in their letters for @BorisJohnson to share their experience, hopes & ongoing infection risk fears.
#ShiningALightOnLongCovid #LongCovid #LongCovidKids
CEO Sammie McFarland handed in the new charities NEW support guide available as a free digital resource for families, kids, schools, healthcare professionals parents and caregivers.
#ShineALightOnLongCovid #LongCovid #LongCovidKids
#ShineALightOnLongCovid #LongCovid #LongCovidKids
Founder and CEO of LCK Sammie Mcfarland "Today is an incredible testimony to all the family's children and volunteers from our organisation who have worked tirelessly throughout the pandemic to raise awareness for children living with Long Covid who have been ignored.
Jacob is 11 years old & has been unwell since March 21. 2 weeks after #covid19 infection he lost mobility in his legs & required mobility aids alongside physiotherapy twice a wk ever since.
Jacob wants more support for families living with #LongCovidKids
#ShineALightOnLongCovid
Jacob wants more support for families living with #LongCovidKids
#ShineALightOnLongCovid
Emily is 9yrs old, she contracted Covid in Sep21. She was admitted to hospital for 13dys in Nov due to severity of her #LongCovidKids symptoms.She now uses a walker as has severe pain in her back & legs.
Emily would like more funding for LC services
#ShineALightOnLongCovid
Emily would like more funding for LC services
#ShineALightOnLongCovid
Anna is 9yrs old & has had #LongCovidKids for 2yrs.
She uses a wheelchair as has severe pain in her legs when she tries to walk. She feels people are pretending Covid is gone.
Anna is asking the PM and Scottish government to help children like her.
#ShineALightOnLongCovid
She uses a wheelchair as has severe pain in her legs when she tries to walk. She feels people are pretending Covid is gone.
Anna is asking the PM and Scottish government to help children like her.
#ShineALightOnLongCovid
